Referral to Orthoptic Neurologist

Hi All,

I am currently having investigations for MS. I had nerve conduction in early Jan and had an MRI of my neck last Friday. I have now been referred to an Ophthalmic Neurologist, but I don’t know why? I did see the Eye A&E a few months ago, referred by my optician. They originally thought it was Optic Neuritis, but when i went back the next day after discussions with about 5 different Doctors they decided it wasn’t. The last Dr I saw said he thought maybe it was ON but as it had taken 2 weeks to get an appointment with my Optician, that it had resolved itself. He knew I was having an MRI and said this would confirm. However, this must not have been communicated to my Rheumatologist (I have other auto immune disorders) and only my neck was scanned. My eye issues have resolved mostly, although my peripheral vision does seem reduced still, but my colour vision is now back to normal.

I have no idea why I have been referred, I can’t get hold of anyone to tell me. The appointment was made before I had the MRI so could it have been from the results of the Nerve conduction?

The appointment isn’t until March, so I am getting a bit freaked out. I have completed an econsult to my GP to ask if they can shed any light. I have looked up Ophthalmic Neurologists and it says they look after eye problems that stem from Brain disease such as Brain Tumours and MS. I am kind of happy that the appointment is in March as if I had a brain tumour, you would think the appointment would be sooner??

I think I have been trying to put my symptoms down to my other conditions, but there are several symptoms I haven’t even spoken to my Drs about which also suggest MS. I haven’t told them about my balance issues, my continence issues, my cognitive problems etc They only know about the pain, numbness, weakness and electric shocks in my arm.

I am currently taking a stronger dose of oral steroids due to another condition, and when on the highest dose, some of my arm symptoms went away! Now I am reducing they are slowly coming back.

I know I am being impatient, but I have so much on my plate, I just need to know so I can deal with it.

Thanks for listening

Hi, for a neuro or any kind of doctor, they do need to know ALL of your symptoms, to give them the best chance of a correct diagnosis.

Boudsx