Hi All,
Just beginning to accept my recent diagnosis, December 2021. Been hard to accept my life has changed forever from being an active outdoor girl to basically having to concentrate so hard and not fall over and accept that I need assistance from walking aids , stairlift etc. I’m a very stubborn and proud lass and just want to do stuff that I used to do but obvs that’s not going to happen anymore. Thanks for reading, not really spoke much about condition to anyone.
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Hi I can only empathise and say I could of written those words. Diagnosis 2016 still not reached acceptance. I try to be positive which I find incredibly hard truthfully. I hope your journey gets easier 
Hi Beat it.
Welcome to the world of PPMS. I’ve had it 24 years and it progressed quickly for me.
But it is what it is and we cant change it, eh? Having said that, everyone deserves a rant now and then and we are all here for each other sweetheart.
Boudsxx
Being stubborn and proud is mostly a good thing. It is flippin’ (substitute your own expletive - I keep being ‘moderated’) awful to lose regular functionality and to be forced to adapt or change what we do. I would suggest that you learn to listen to your “new normal” body so that you can push the boundaries as far as you can without messing things up for yourself or others. I have had MS and consequential changes for longer than I did not have MS, and still mourn the stuff I can not do and rage at the problems but can also manage to avoid being beaten so can still smile (a fair bit)
Good luck
Mick
I could have written that myself too…had a horrible day today and genuinely felt everyone would benefit if i wasn’t here… and that isn’t like me!!! I was diagnosed about 12 years ago with RRMS, but i think I’ve had it since I was 25 (43 now) mine was pretty unnoticeable, until I had my baby… 3 months in hospital, couldn’t walk etc… got out and had to care for my newborn daughter alone, mum died a week after i conceived her and dad 10 years ago. Believe it or not! Im actually quite a positive person (?!) but just recently, it is feeling like things are just getting to much… everyone thinks i’m so strong and ‘amazing’ and I just feel like a (removed by moderator) mum and a total failure… not after anyone to cheerlead for me, I just wish people understood what a cruel unpredictable time I’m experiencing… I hate people to feel sorry for me, just desperately miss my functioning body…
Wow! So you’re saying it’s not just me that feels like this.
I’ve had PPMS for approximately 12years. Other health issues recently have edged it on just that bit blummin’ faster.
I used to be positive and outgoing but that has taken a serious knock recently.
On a positive note despite being a lot worse i will get back to being the crazy loon I was 
Hi Cruella,
Yep feel bit rubbish at moment…worse if I need a shower/bath cos it seems to generate an overwhelming feeling of nerve pain. Feel better chatting to our MS friends knowing we all in same boat !!! I still love my life have a fantastic hubby and daughter that keep me upbeat and positive …you keep safe and head up and carry on x
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I,m like you stubborn and cannot get used to this SPPMS in any way so for me 1 day each day so I would say change the game for you each day that’s all on my mind. keep in touch
HI PB,
Hope today a good day…and you carry on being a loon!!!
Lovely to hear from you and knowing I am not alone .
Keep safe.
Hi Beat it
Today has been ok. Had to have my suprapubic catheter changed but at least that won’t need doing again for a few weeks.
How about you? How you feeling today?
Look forward to hearing from you when you get chance.
Best wishes
Sam