I am so sorry to hear you have such a young child with ms. This must be very hard for you all. xxx
It is very hard also to make decisions for a child knowing full well there are no statistics for the newer drugs.
I am speaking from personal experience but i do have a child of similar age to you.
I was on Rebif for 10 years. My ms was stable on Rebif for most of this time without too many problems in the early years.
After a while i started to feel pretty ill on Rebif and i was told i had failed on the treatment.
I decided to go on the Tecfidera/aspirin trial. I have stayed on Tecfidera when the trial finished. I have now been on it 19 months.
I am really glad i made this decision. Tecfidera has had a very good safety record for years as it used to be used as a treatment for psoriasis. Tecfidera is not a ;big gun;. It is a first line treatment - same as Rebif, but it is more effective than Rebif.
Tecfidera is the most effective first line treatment available at the moment.
There are side effects to every treatment but if this was my child i would want him to be on the most effective treatment possible. After a fail on Rebif - i would want my child on the best first line treatment possible. Tecfidera.
Tecfidera is made in 2 doses (120 and 240). Try getting in touch with Biogen - the company who make Tecfidera. and seeing as your circumstances are so unusual they might help you trial him on a very low dose. You would have to work with the neurologist as well of course.
If you can;t get in touch with Biogen then ask your neuro/nurse to speak to the Biogen drugs rep that visits the hospital.
I am doing well on Tecfidera. There are side effects but they are easily managed. I am feeling much better now. I have made improvements on Tecfidera/
I send my best wishes