Hello posting on behalf of my husband who has relapsing and remitting MS and was diagnosed about 13 years ago, though his symptoms started much much earlier.
For many years he was on Avonex and for the last 7 years or so on Plegridy. He has a number of other conditions too such as asthma and acid reflux. He works full time and is usually exhausted when he gets home.
I’ve noticed a deterioration in his health, particularly energy levels, taking pain meds daily and cramps and numbness in his legs. He takes plegridy every 2 weeks and is pretty much bed bound for 2 days though it takes 3 days to recover completely.
He has consulted his MS nurse about the continuing numbness in his legs, had a recent MRI that shows no new lesions but his nurse and consultant think plegridy is no longer working for him.
Has anyone had any experience of alternative meds that have less severe side effects and work for patients who work full time? Plegridy meant giving up 2 weekends a month which has long been an issue for him as there is no “down time” from work.
Other than being overweight (COVID belly) he’s in good health. Any thoughts on meds that have worked well welcomed