Plegridy

Hi, my name is Jenna and I am newly diagnosed. I’m 30 and have 2 kids. This diagnosis has completely pulled the rug up from yndet my feet. :-/. I have just been given a few leaflets for medications to look at. Plegridy appears to be the most suitable to me and my life, however: I like to drink some weekends and I am not talking a glass of wine or two I am talking absolutely hammered :open_mouth: is this going to be a problem with this medication? I want to treat my ms but I don’t want treating it to affect my life or take away things I enjoy to do. I work I have no balance issues and drink is making no difference to my current situation therefore I do not want to give it up altogether. Sorry I sound like a raging alcoholic but I’m not lol. I am also interested in people’s experiences with this particular medication, side affects that they did or didn’t experience and how successful they found it. As I am very new to all this I would be most welcome to any advice or information anyone can share with me. I don’t know anyone with this condition and am trying to not let it ruin my life completely :-(.

Thanks so much for taking your time to read threw my long and rambling thread.

jenna :slight_smile:

hi jenna

were you offered the oral therapies (tablets) as well as plegridy?

i had copaxone as my first DMD, all went well for 5 years and then some injection sites became painful.

i asked my ms nurse and she said skip the painful ones and inject somewhere else.

eventually i could only do one arm and my bottom.

the injection site on my arm became messy so my ms nurse told me to stop injecting and i went on tecfidera which is so easy!

a tablet twice a day compared to daily injections!

i know this is not answering your question but it is my experience and may help a little.

carole x

p.s. i’m drunk right now!

Yeh I was offered all of the first line treatments and plegridy was the one I chose. Whilst I get that the oral medications are somewhat better I doubt I would remember to take them and therefore wouldnt get the full affects that they can offer. I thought that was the best one for me and my circumstances. :-/ obviously I am unsure of whether this is the right choice but it does appear to be successful for many people. Injections are not an issue for me I took vitamin b12 every 2 days from June till November with no issues. I am aware it’s not the same but the injection regime worked well for me and I am hoping to use that system to help with me managing this. :-/

Yeh I was offered all of the first line treatments. I chose injections because I’m rubbish at taking medications, always forget and well that’s just not ideal if your wanting the full affects. Injections work well for me. I took b12 every 2 days for months without an issue. The whole thing about how you can take it provided its less than a week late really appealed to me because I am so disorganised and my life is so busy. Tablets always seem to get last place on the priority scale with me :-/.

hi jenna

with tecfidera i quickly learned to take my tablets after eating something.

if i take them without i get a deep flush which looks and feels like sunburn, i also used to throw up.

a week of this and now i eat anything eg a banana before taking it.

anyway good luck with plegridy.

carole x

All new to me, i will sit back and see where the discussion goes.

Hi Jenna,

I was diagnosed in July last year and started Plegridy in December, due to take the second full dose tonight (3 injections so far, 4th tonight)

Everyone is different but I have found the flu like symptoms minimal, just get slightly heavy legs/arms. It does make me a bit tired so I do it in the evening and get to sleep a lot of it off. My site reactions are quite bad, on my legs I get red, hot, swollen and a bruised feeling around the injection site. My arms the same, with added itch and rash! This doesn’t bother me too much, anti histamine and cold packs help. The injection itself doesn’t hurt, I can barely feel it anyway!

Going back to your original question, I still drink. I like red wine, can easily drink a bottle on a Friday night and again on the Saturday (sometimes more, depends what I’m doing). This is something I will speak to my MS nurse about though, because as you know, when taking Plegridy we have to have regular blood tests for kidney/liver function so I want to find out a little more about it all. I was never told I not to drink.

Don’t forget to look after yourself though, especially after a night out. Make sure you rest up the day after if you can so you don’t end up making yourself feel ill :slight_smile:

If you ever want to talk to somebody close to your age (I’m 27) Please get in touch, I’ll be happy to talk.

Hope you go on ok xx