I thought I had quite a good understanding of MS, well as far as you can understand it but now I realise I have no idea. I’m in the system with mild symptoms that are not too bothersome at the moment but I’m finding myself questioning a lot of things that are probably nothing to do with it as I’m sure a lot of people do.
I always thought that with MS you would have a relapse, it would last for however long it decided to stay and that hopefully when it left you would recover somewhat, although some symptoms may remain after each relapse. (with RRMS) Do the symptoms that remain stay with you 24/7 or do do you get any respite. So if numbness was a symptom that stayed with you would you be numb all of the time with no let up at all?
What confuses me is the symptoms that appear weeks, sometimes months after the first one and that some continue to appear, for example pins and needles on and off for a few weeks, then suddenly twitching starts, then again a few weeks later the MS hug rears it’s head and so on? Is this one long relapse or loads of little ones?
I also thought that as long as the relapse was active your symptoms would remain pretty constant, not coming and going every few days or be bad in the morning, go off during the afternoon and be back by teatime whatever activities you are doing or even not doing.
Also the MS hug, I read about people having it unexpectedly with no other symptoms, is this not then a relapse if you haven’t had one for weeks or months?
Any insight into any of my misunderstandings would be much appreciated.