I am having problems at because of the lack of empathy and understanding which is causing me a lot of stress, as anybody else come across this?
It’s hard getting people to understand when a lot of our symptoms are invisible. There’s a really good publication on this website called “work and ms”. My manager and HR manager found it really useful. It gives a good description of the condition but also explains your rights as an employee and theirs as your employer. I had a meeting at work where we went through the information together, gave me chance to explain how ms affects me and helped put a few things in place like short breaks if I need them. Good luck!
Hi, when I was suffering fatigue, falls and foggy thinking, my manager had little to no patience, even though we were good friends, she seemed resentful when I could no longer keep up the fast pace we both had.
I went to see my practice nurse about something unrelated and when she saw how tired I looked, she asked why. She was livid when I related what was happening and she urged me to take a weeks sick leave. I did so. The following week came and I felt no better, so I saw my GP and she put me on sick leave…I never went back, as my symptoms worsened rapidly.
I was medically retired 8 months later.
depending on how severe your symptoms are and your ability to continue working, your OH department should be consulted, to see what done in your workplace.
Hi Essie I have the same problem at work. They dont seem to happy about all my hospital appointments (was only dx earlier this year so seeing a right mixture of people) and I just feel unwanted in the company (i have been moved to a different office where there is no work for me to do) Please dont let it get to you. I was all up for handing in my notice but doubt i would be entitled to any form of help and the thought of finding another job makes me feel anxious so for now i have no choice but to stay put. Keep your chin up xx