Sounds nasty Poll,and I’ve got feet so I empathize. 'Praps by altering the sensory input the quality of the pain may change.Sticky tape/masking tape etc in squares,then applied to the area might be worth a go.
The circulation in my lower legs is poo,but by gently playing the warm air from a hairdryer,I can change the pain.I’ve never used the hairdryer on my head,but it does help glue to set,and is handy for drying out the buggy after a drenching
If it should be a circulation problem, something I suffer with, I wear support tights and it helps a great deal. I get them from the gp, not your everyday support tights, as the ones I wear are blinking hard to get on and off. It has stopped the vasculitis that I was suffering with. Just a thought. Good luck.
If the pain is neuropathic,it is caused by sensory input being ‘mangled’ by areas with damage to nerves. By changing the sensory input the sensation of pain changes.There are lots of ways of changing the sensory input,and I’ve even stuck the pads on a TENS machine to the soles of one foot. By 'zapping ’ this foot the pain in the other virtually disappears. Might just be me but I’ll try anything and everything.
Have you asked the district nurse to get the tissue viability nurse to assess you?
They have special pads the can put under problem areas and attach it to the computer to get an accurate reading of whats happening when lying in bed and sitting in a chair etc. They could also do a dopler test while they are there to check your circulation.
So much better to sort the prevention out rather than dealing with pressure sores.
Hope you can get something effective in place soon.
Hi Poll, i have the same problem, and told i am at serious risk of pressure sores, they gave me some boot things,air cushions in the shape of boots,well i couldnt keep the things on, then they gave me an air cushion,but it doesnt help that much,its so painful,and so annoying,i find the thing that helps the most is to put a pillow under my knees,so they arent touching anything.