I’ve been given a preliminary diagnosis of MS. I’ve had 3 MRI’s and am scheduled for a lumbar punctur on May 13th. My first MRI was scheduled after I had what was originally diagnosed as a migraine episode back in November (on the weekend when I had ALL the in-laws over for Thanksgiving dinner). The MRI was reviewed by a neurologist who was concerned enough to have a MS neurologist look at it. I have several lesions in my brain, it turns out. My last 2 MRI’s did my brain again and my spine. I’ve also had the blood tests done. I haven’t had any symptoms since the first episode. I won’t see the doctor again until after the lumbar puncture so I don’t know what the blood tests said.
I know that each person is different in their episodes but I have a couple of questions.
How often do the episodes occur? Is it every 6 months? every 6 weeks? I had trouble thinking straight, walking straight, and generally being alert when I had the episode in Nov.
I’ve had some general muscle weakness, tingling, and pain in my right leg for the last few months, can this be a symptom? My GP told me it was lack of exercise and a bad knee but I’m a bit dubious about that now.
Is anyone else getting treatment through Colchester Hospital University? Are they good? Are they pro-active? I prefer to get ahead of this and not wait for another episode or symptoms to occur.
As for the upcoming lumbar puncture…the nurse who scheduled me said I need to lie down for the first 3 days afterwards to ward off any headache. When she says lie down, does she mean flat or can I sit up in bed and watch the telly? I’m not much on lying flat or lying in bed doing nothing at all for that matter. But I really don’t want a headache! Must admit, lying in bed with my partner waiting on me hand and foot does sound interesting.
I’m trying to stay positive and not dwell on what might be. My partner and I are getting married in Cornwall in August so I’m much more concerned about whether it will rain on the day than anything else.