Yeh its like a roller coaster, or a roulette wheel, where will the dice land next lol. I find if i have a good night, i can have a bad day and vice versa. There is no rhythm to it at all.
If i just sit about all day and do nothing, yet spend a day doing loads, the effects can be the same lol.
I just get on with it now, its part of who I am, and I have learnt to live with its craziness lol.
What makes you think you have MS? Out of curiosity the symptoms you have could be for other things, even lymes. When i went on my journey i was open to anything to be honest. I even went to breakspeare Clinic and had lymes test, and it turned out i had a co infection of lymes, but Dr Munro said she would diagnose me with MS, as she did an intensive neurolgoical work out, I have never had with a nuero in the NHS, and said she would bet i had MS and would get diangosed with it eventually, she was right.
The Lymes kicks me every now and then but I know which is which now.
There are so many weird things out there.
What helped me too was to do a full time line of all my symptoms, and i found my very very first symptom was 1981, i had dead arm and pins and needles for ages in my left arm, was told it was nothing, when i mentioned it to a nuero he said no it wouldnt be the MS way back then, as I would have been more disabed now, but makes you wonder what was it?
Have you looked up sjorgrens disease? A lot of what you have could be attributed to that, even the dry eyes and twitches in muscles.
I paid for my very first head MRI, it was loaded with high signal Foci in the deep matter of my brain. The result? The radiologist felt it wasnt demylination event, BUT MY AGE lol…
Sorry took so long replying, I have PPMS and it has been a gradual deteriation I was diagnosed twenty three years ago and am now in a wheelchair but have given in gracefully as my mobility has progresed
Don in a hot and sunny Margate