Pat’s right; PPMS stuff just does not go away. I’ve been having leg spasms for the past 6 years, making sleep particularly difficult, although baclofen does help. It doesn’t go away mind; just makes it easier for me to sleep.
Anecdotally, every person I’ve ever met who ‘knows someone with MS’ has regaled me with tales about how they kept ‘losing their vision’ and ‘having attacks which meant they couldn’t walk’ or ‘struggled to speak and remember things’…usually prefixed by the word ‘she’…!
In short, the 90% of MS folk who have RRMS that tend, mostly, to be women aged 20-35 and, therefore, the sort of people known socially to the school mums and dads that I talk to. Sorry if this comes across as sarcy or dismissive, but as a sporty rough’n’ready bloke in his early 40s who has never experienced any of these syptoms yet has not been able to walk “properly” (i.e; not bed bound after an “attack”) for the past 6 years I have grown increasingly irritated by the public seeming to equate MS with RRMS. To state chalk&cheese might seem a bit harsh, but it often feels that way.
Us 10%ers need to stick together. Chin up about your diagnosis. Try baclofen: it really is a godsend to me.