PPMS Diagnosis Journey: Which Symptoms Appeared First?

Symptoms and treatments
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I’ve been reading about Primary Progressive Multiple Sclerosis (PPMS) lately, and I that many people say their first symptoms were easy to ignore. Instead of sudden flare-ups, the changes often seemed to happen slowly over time.Some of the symptoms people mention include:

  • Trouble with walking or balance
  • Leg weakness or stiffness
  • Ongoing fatigue
  • Muscle spasms
  • Numbness or tingling
  • Bladder or bowel problems
  • Vision changes in some cases
  • TDS Water Tester, Drinking Water
  • The Upright Life Guide to POTS & Dysautonomia: Symptoms, Diagnosis, and Daily Strategies for Orthostatic Intolerance

I’m curious about real experiences. If you or someone close to you has PPMS, what was the very first symptom that made you think something wasn’t right? How long did it take before you got a diagnosis, and what has helped you manage day-to-day life?

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It started with a limp…!

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My first symptoms also evolve over time. In my case it was weakness in my legs when walking. It took me several months to recognize that this is something out of the ordinary, and I only went to see a doctor when I tried hiking and couldn’t finish the hike. Before that there was a long period of regular feelings of nausea, but my neurologist thinks it’s unrelated, or maybe just a trigger but not a symptom.

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Why are you curious about these experiences. Do you have PPMS or are you just nosy?

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