My son was diagnosed with MS about 6 years ago when only 12. He had his first episode at about 7 which was initially diagnosed as ADEM. He has been on Rebif for the past 6 years and thankfully has not had any relapses.
However, we have been called back by the neurologist following a recent routine check-up. They are not saying much in advance of the appointment which is not for another 3 weeks but they have mentioned that he has shown up positive for MOG antibodies.
A bit of googling (dangerous I know) suggests that this is developing area of focus and they are now starting to re-classify some MS diagnoses as MOG-EM. I am now on tenterhooks wondering if we are going to get a change in diagnosis and, more particularly, if this is good news!!!
MOG-EM seems be a de-myelinating disease which is similar to MS, often with a similar pattern of relapsing/remitting episodes but, I think, the prognosis is generally better than MS, though this is difficult to discern for the literature available. The information on treatment is also a bit unclear.
Has anybody any experience of this? What are the treatments? What is the prognosis?