Hi - I am new to this Forum.
My 10 year old son has just been diagnosed with Relapsing Remitting MS. He had his first attack in December when he lost the mobility down his right side - this was diagnosed as ADEM. He fully recovered with the help of steroids and we went back to living our lives. However, two weeks ago he lost mobility in his left side - mainly his leg this time, rather than his arm and face too. An MRI showed new lesions on his brain and we were transferred to LGI. The staff there were wonderful and we stayed in five days whilst they did a battery of tests. They are now saying it is MS as the lesions from the attack in December are still there - if it was ADEM they should have disappeared. Also one of the lesions is so rare in its shape (it has a circle round it) that one of the doctors who has been working in neuro for 15 years has never seen one in real life.
Thankfully, this time my son has recovered his mobility without the aid of steroids but we are reeling from the diagnosis. I’m trying to stay as positive as I can but I’m so worried about what his future holds. I know everyone has a different experience of MS so its impossible to get a definitive answer. I’m taking strength from my sons response to the diagnosis which was “well life’s a game and you’ve got to play it”. I’m realising that the new normal is to take each day as it comes, stop googling for information as I’m terrifying myself and if/when a relapse occurs we will deal with it accordingly.