Hi folks i am new here and must say what a great site it seems to be from what i have read so far , i have searched everywhere to ask this question and landed here so here goes
Approx 2002 i was a ships officer on our local RNLI Lifeboat when late 1 night on a callout i noticed something wasnt right , when i switched the interior lights of the boat from white to red the writting i was writting whilst communicating on the Radio dissappeared totally and i came over all funny , not seasick but just wierd, after that night i went to see the opticians who gave me glasses but it still happened time and time again anyhows not long after i felt that something was wrong and i could no longer hold the position safely so after 12yrs i retired and 1year later was asked to join the HM Coastguard Cliff Rescue team , after much hesitation and because they were begging i agreed and did a further 5yrs for them.
During all the above i noticed i started to pull muscles that i had never pulled or hurt before and figured due to the head injuries sustained from all the car crashes and motorbike accidents that my body was now saying hey times crept up your getting old now.
I was 35 when i first started noticing the difference and during my time with the RNLI at the later end i decided to get things looked into as i had noticed the tremors , i had always shaken but these had become somewhat troublesome now , after some examinations my Neurologist said at 1st it was ET (Essential Tremor) then a few years and visits later he changed this to what it is classed as right up til today Parkinsonism with Dystonic Tremors and he started saying i had a form of Dystonia.
Now here last January after a brief 4-5 weeks of pain in my left eye i went to my Drs who was not my normal Dr and she said i had Conjunctivitis of which i disagreed with her due to the fact my eyes were dry , but she sent me on my way with eye drops for this 4-5 days later i awoke totally blind in my left eye with huge amount of pain , i felt the pain through the pain medications i already take so i knew it must be bad , so off i went to the A&E to get checked anyhows after alot of toing and froing i finally got a diagnosis or Optic Neuritis from the Optham , so my Neuro orders an MRI Scan & Lumbar Puncture , the results of these came back as a white Lesion on the brain and O Bands in the CSF , he has now stated if it happens again its MS if it doesnt then its a 1 off episode of nerve inflamation.
Today i am typing this with an eye patch on so excuse any spelling mistakes as im still getting used to it all , but my question is has anyone else had this kind of history , as both myself and my wife feel that my neurologist may have made a mistake in the very begining as when i stated to him could this of been MS from the start hes saying no this is a secondary condition to the Parkinsonism and Dystonic Tremors.
Sorry its so long but i wanted to give the full picture to see if anyone else had the same start to it all , at present i can now see a very small amount of light in my left eye and blurs but its still painful and in the last 2 days ive had very sudden and sharp pains accross my forehead and in my eyes and then it stops and leaves me with a head ache , i have an Optham appointment on the 17th who said if i was going to gain any sight all improvements that i could expect would be settled by 3 months and im now in month 5.
All the best and thanks in advance regards