Sorry to dampen your evening but I need some thoughts please? I think I may have been trying to keep a brave face on everything for too long and today there have been tears and I would be lying if I said I’m not scared!
i was diagnosed in 2011 came as a complete shock but Drs are now saying a head rush sensation in 2007 was probably the start although the brain scan in 2007 did not show anything. I have been on Avonex since Aug 2011 and providing Tecfidera is added to our prescribing list I will be moving.onto Tecfidera.
I have Nystagmus in left eye which at the moment is freaking me out. I work, drive and have two daughters aged 11 and 7 who still don’t know about my MS. I think they now need to know so they understand why Mummy is sometimes very tired and why there are times when my arm and leg don’t want to behave.
The last few days I have had bad aching around the eye which hasNystagmus and have got myself in a state worrying that I will loose sight, driving license and won’t be able to work. I keep on trying to tell myself that medical science is moving and one day our lives might be a little easier. I just feel like a lost cause and I don’t know anyone personally with the condition who I can turn too locally.
Has anyone else had the dreaded task of telling their children or felt like me and can offer some thoughts of how I turn my thinking around?