Sorry to go anon, but im struggling with this.
I receive PIP and have done for a few years. The thing I struggle with is when im feeling well. my M.S is a real roller coaster, I can go from feeling brilliant to crashing on the sofa and using my wheelchair/crutches in a matter of hours.But some times I might feel well for a few weeks. The thing I struggle with is, when Im feeling well, I feel like I should be trying to walk a bit further, do a bit of exercise. I spend so much time sitting which is not good for me, I think that I am trying to help myself. But I feel constantly guilty when I feel well because of my PIP. I think I need it,and meet the requirements for it most of the time, but there are times when I don’t.
The feelings of guilt are definitely holding me back from doing more or trying to do more, because im petrified that if im seen walking (believe me its more of a zombie walk than a brisk speed) then Ill get in trouble. There is a lady that has been done for being at Crufts with her dog, now Im not going to be doing anything like that but it really upsets me that I shouldn’t be able to try to build myself up with out this over riding guilt.
I am unable to work, but wonder if I would be better coming off PIP and really trying to hold down something for a few hours a week to cover the money |I would lose. We need it, my hubby cant work any more hours.I thought PIP would free me a little and help me move forward but its having the opposite effect.
Thanks for listening x