Hi i hope your hubby is feeling better. Weirdly enough the vaccine for flu 2017 included the kangeroo one yet people are getting sick but there is a bronchial thing doing the rounds as well.
Anywoo, the thing is with PIP its not the same as DLA and people are not filling in forms right and explaining how they are coping independently properly. It makes no difference what disease you have now, its down to how you live independently.
I urge you to try this test it will show you exactly what they are looking for.
Now a friend of mine her husband didn’t get his PIP and he had the worse form of meningitis and a heart issue, and has mental health issues too. I have met him so i know how he is. He FAILED on both. He has a carer but he kind of supports him emotionally but he also has really bad bladder issues wears one of those special catheter things as his bladder is not working. I knew he should have got something just for that, but the guy who filled his form in did not do it right, neither did they send in real supportive evidence. They went for mandatory reconsideration and was booked for tribunal, now wait for it i think they waited like SIX months for the tribunal actually my memory is rubbish it could be longer then that. Anyway he got full care and standard mobility which is as it should have been in the first place. So just playing devils advocate here some of the issues are not they dont believe you, but its just that there was no supporting evidence for them to see. Its easy to say i cant walk more then a few yards, but they need the evidence if that makes sense.
If you have had a care plan with adult social services this is brilliant as they can see how people are as its been confirmed by professionals. My assessor told me straight away he had really good supporting evidence from my GP and my neuro about how my illness affected me, without me even opening my mouth.
I had a DWP person do my form from aged uk and she explained a lot to me.
So dont give up Nina make sure you get all your paperwork together and proof and even see if you can get supporting stuff from GP and neuro.
We shouldn’t have to go through hoops but sadly there are people out there who are using the system and genuine people like yourself are suffering from it.
Take heart i am sure you will win your case ok. Please do the test its very eye opening.