I posted earlier in the week as my neuro follow up appt after brain and full spine MRI had been moved from 4th June to 23rd July. In his last letter to my GP, he said he strongly suspected MS, but was sending me for the scan to ‘confirm diagnosis’. I called neuro’s sec yesterday and she said she would ask him to call me today.
Just spoke to him and he has said he can bring my appt forward to 13th June, so that’s really good.
He said my MRI showed more lesions than my last one in December. But he said it wasn’t too bad. He just said it was abnormal. He has also said that he doesn’t think it’s enough to make a firm diagnosis but that they would probably monitor things over the next 6 months, but that we could review the scans together at my next appointment.
I am so lucky that I have a neuro who would call me himself, I know this. But I can’t deny I feel a little deflated. I had geared myself up for diagnosis after what his letter had said.
He also said on the phone that at this point, he would not consider putting me on any medication. Which, if I don’t have a diagnosis, I wouldn’t expect anyway.
I don’t know why I feel upset, but I do. He’s a neurologist, and I am not, so obviously he knows far better than me. I do feel perhaps he should have been a little less free with putting in that last letter about ‘confirming diagnosis’. I had worked myself up to accept this dx and to move forward. But at this point, it doesn’t seem I will.
Although, I doubt any neuro would give a dx over the phone. Maybe he was trying to alleviate my anxiety between now and when I see him.
I’ll have to stop second guessing and wait for my appointment I guess. Just wanted to share
For now it seems, I am to remain a firm resident of limboland