Okay so I’ve been here for eighteen months plus in limbo land and am on my third period of struggling with my health. Most definitely the worst. Saw a new neuro last month as mine had retired and it was an atrocious first appointment. Wouldn’t let me speak, kept cutting me off and then just referred me for MRI without letting me tell him everything that had happened or what symptoms I had. Mri scan done and report back with neuro and told a letter was coming last week.
One very bad end of week and weekend symptom wise and I ring the neuro’s secretary to ask if I could pass the new symptoms on to the neuro and ask for medication to help and was outright refused. Told me to speak to my gp. I asked how could that be done as id not got my results letter so they wouldn’t have it yet either. Told they get passed over electronically. I asked if the letter contained any suggestions for medication as my gp won’t prescribe without neuro’s say so. She wouldnt confirm but promised to check with neuro and ring me back
spoke to doctors in the mean time and no sign of anything on my records but they’ll get a doctor to check and ring me back
well 24 hours later and no call back from either. Struggling, walkings getting worse and no one seems to want to help!!. At the end of my tether but really don’t know where to go from here with no support from my doc/neuro!!
any suggestions? :’(