I wonder if any of you suffer with occipital neuralgia.
i am not diagnosed with ms, it was mentioned initially by my neuro, but in the light of a clear MRI etc was dismissed and now I am told I have migraines. I asked why I have numb patches that have stayed for over 18 months and got some garbled theory about auras. I have never known a migraine aura to last that long. I have consistently had new patches appear with periods of being unwell. I November last year I started with my right hand and arm cramping, within a day my right hand went numb and a few days later the excruciating pain started in the hand that last weeks.
since then the feeling has never come back. I finally had some nerve tests done of the hand and it was found that I have nerve damage
Yesterday, I woke and noticed a couple of toes were numb but felt like someone was squeezing them, they are still doing that today, but last night about five I started with occipital neuralgia. I have had it in the past, but nowhere near as bad as that. I was nearly crying and passing out with the pain. I got home and took some meds for it, but even this morning it’s still there. My right hand and arm are burning, I am experiencing a lot of twitching all over and the tinnitus I have experienced in my right ear for weeks now is louder than normal.
I went to a different gp a few visits ago who felt that it could still be ms, but at the end of the day, clear MRI’s are proving otherwise.
i guess I am just trying to figure out what others on here think with hindsight and experience.
thanks for reading this