Have been in almost full remission since April time and I guess I naively thought I was ‘normal’. My little boy started school this month and I wanted to be like all the other mummies doing the school run. Unfortunately we live about 15 mins walk away from school (20 mins when my 2 year old is walking with us!) and although it’s fairly flat land, even slight inclines with a buggy can be hard. I was so tired last night that I fell asleep on the sofa at 8.30 and, apart from hubby waking me to go to bed, I slept through to morning! My legs are stiff and weak and I just feel exhausted All I wanted was to be a normal mummy, and now it looks as though I’ll be taking the car most days. I even suggested to hubby this morning that we move closer to the school as I’ll be doing this journey for the next 7 years with one or both of the children! So depressing…I love to walk.
It is hard isnt it when we get reality checks about what we can/cannot do now. I find it exhausting most days to walk to the bottom of the garden, I love gardening and haven’t managed that this year at all
Taking the car is not an admission of defeat, it’s a necessity Emma. Walk when you can, and take the car when you can’t. At least you are taking your children to school and being a good Mummy - I have seen children walking to school on their own at the age of 5 or 6!
Don’t beat yourself up about the things you cannot do, praise yourself for the things you can do Emma.
I know how you feel Emma - my first 3 sons had Mummy take them to and from school when I wasn’t working,so I was a ‘normal’ mum. However, my youngest son, who is 7, will only ever remember Mummy not being able to walk properly, who had to give up walking to and from school last Summer. That is one of my saddest thoughts about MS that my youngest son will never know what it’s like to have a ‘normal’ mum. Teresa xx
Hi All, IT IS AWFUL HOW PAINFUL MS IS. WE TRY AND DO WHAT WE CAN, BUT IF WE DOES JUST THAT LITTLE BIT EXTRA WE SUFFER… I FIND JUST WALKING ROUND THE SUPERMARKET AWFUL…TODAY IS MY 46TH BIRTHDAY, AND ALL I HAVE DONE IS SLEEP…SICK OF BEEN MISERABLE AND FEELING LIKE C**P.
SORRY FOR THE MOAN,BUT I DONT KNOW WHAT TO DO!!!
You say you want to be a normal mummy. I know lots of normal mummies who are so lazy they always get the car out to take their children to school which is only about a 10 minute walk away and they haven’t got ms!!!
Don’t beat yourself up, as Paula has said when you feel you can walk, walk, when you can’t take the car. I admire you that at least you are trying. You are still a good mum, either way.
echoing the other comments. There are so many mothers that drop their kids to school by car. At least you’re taking them - some mothers don’t even do that. Save your energy for the bigger tasks, its important you try to pace yourself. It’s hard coming to terms with the fact we’re not invincible anymore and we need some time out too occasionally.
Please don’t beat yourself up about it, as long as you’re there when it counts - to wipe their noses, give them a cuddle, put them to bed and tell them you love them. That’s what really matters.
Thank you all! The voices of reason as always! I was having a bad time this week as I’d been so ‘normal’ for so long, that I could almost forget there was anything wrong with me. This just came as a blow and it made me think of all the unknown problems in years to come. I’m going to focus on spending lots of quality time with my boys, and if it means I have to drive everywhere to have enough energy to play with them, that’s how it’ll be! There are more important times to enjoy than the school run!!! X
Oh and a belated happy birthday to Jan and so sorry you’re feeling so rubbish. I hope you have a better day today x
I always had to be at work for 8am so my childminder did all the schoolruns.
I doubt very much if it made any difference to my kids either way,its you being there for them that they remember,especially when its a cuddle on the sofa with the duvet when they are ill.
Karen put me straight this week that my wheelchair was a tool to be used so that shopping/days out etc could be enjoyed not endured.
The car is your tool, when you pick them up in it and they are excited about all the things they have done and made you can enjoy them telling you all when you get home rather than wracked with pain wishing for peace and quiet.
Dont beat yourself up or think too much about the future enjoy today