Having got my new batch of antibiotics sons gone to his dads for bloody 1"18 hours max lol. Tonight I’m putting on my onsie (beautiful sight not!!) watching suits and silk can’t beat a man in a suit. Had an interesting convo with doctor today. He’s someone I’ve known a long time from outwith doctors. He said on paper I was the person you’d have least likely put at getting ms. He wasn’t being patronising we were just chatting. He said people are so ignorant of ms and they either don’t know or think that what they read makes then experts. I tried so hard not to cry but I failed lol but he was sound. I was there for my sore throat. And made him 30 minutes late for his next patient oops.
hiya anon
i too am home alone tonight-kids away til sun.
i have only worn my onesie twice-i do love it but getting to loo is so much hassle so i am in pj’s with cardi and blanket!
have had no tea tonight so fancied toast-up it pops then the fun starts trying to get the dairylea on! tremor and inability to hold knife in my right hand means the unit gets some, the plate gets some, my clothes get some and i get about 60% on the toast! but heck did i enjoy it! now its a curly wurly and meatloaf concert on tv-bliss!
sounds like u have good relationship with ur gp-i have too-one of the few that listens to what i dont say as well as what i do!
enjoy ur kid free time and ur onesie!
ellie
I’m still jeans and blanket not comfy at all lol. But I’ve had my 2 hrs of perving at suits and silk. Then watched dynamo. Really unhealthy supper of choc digestives. Hope you’ve had a wonderful kid free times. Sounds like you’ve had fun with ur toast. Can I ask a question how do you get everything tidied up. I think I worry too much I don’t do stuff as I can’t cope with the extra mess. I’m lucky 3 of the gps are great so it’s good. Though there is one who total pain lol when I was numb don’t worry when my right side didn’t work it’s stress you’ll look back in 6 months and laugh. Struggling to find it hilarious yet lol. But the others I really can’t fault x
hi em
i hold the wet cloth in my left less shaky hand and do what i can! or i have to leave til mon when carer is here. my neighbour will pop in at somepoint over the weekend to check on me
so i can either stress re not being able to clean up or forget about it til someone is here to help! thats easier said than done but i have learnt what to stress/worry about and what not to get upset about!
frustration-now thats harder for me to get under control!
ellie
This has made me smile, I’m sorry I have this vision of dairylea everywhere and was thinking I wouldn’t like to see the mess I would get in if I tried. I have always got messy before the MS, but it has certainly made things worse as cleaning it up is twice as hard. It also reminded me of getting some weetabix at lunchtime, well my little doggy cleared up very nicely for me glad she liked weetabix it was everywhere. I have got to the point I have to laugh and joke about things otherwise I would be in an even worse place than I am feeling now. I used to go to what I thought was a good GP in our surgery but I did get to the point I started question my thoughts, as everything was blamed on the depression, I have been taking them for a while. I then went to see another GP that finally referred me to ent, who then passed me to neuro and finally ms dx. I now have a lovely GP I came across him as my dx was almost complete, he actually listened to me. I now see him as much as possible because he talks through the options. I am sorry I am rambling. Barney
I’m jealous :(. I wish I had an understanding GP At first symptoms my GP was quite good, he faxed neurology dept at hospital immediately and said I needed an urgent brain MRI. Howev when they just sent me a routine appointment for a month later he told me all I could do was present myself at A&E as he couldn’t refer me to the MAU. After 4 hours in A&E I finally got onto MAU to find lots of patients arriving there with referrals from their GPs who had bypassed A&E!! At my last relapse my nurse faxed over the protocol for issuing steroids and told me to book an urgent access with GP to rule out an infection. I did this but 20 mins later the receptionist rang and told me to pick up a urine sample kit, fill it and drop it back in. They would test it for an infection and the doctor would then issue the steroids if there was no sign of an infection. She said the doctor had told her to cancel the appointment as I didn’t need one! Two hours later he rang me at work to say the urine sample was clear and then asked me what my symptoms were and did I have a temperature? I was very tempted to point out that if he hadn’t cancelled my appointment he could have checked me over properly for himself. Grrrr! My prescription wasn’t ready until after 4pm that day by which time there was only one chemist that could order them in for the next day (this was a Friday afternoon and I wanted to start on them ASAP as I was going downhill fast). I finally picked up the steroids on a Saturday afternoon but couldn’t take them until the Sunday morning as I was hoping to avoid the insomnia. By that time my walking was worse than an old granny’s. I don’t have a choice of surgeries as its a small town and we only have the one … Neighbouring villages won’t take patients out of area and it wouldn’t be practical anyway when I’m very unwell to be travelling further afield 
Tracey x
Didn’t mean to post anon