I’m wondering if anyone here has been diagnosed with MS with only spinal cord lesions (brain clear)?
Here’s a little bit of info on my story so far. I’m undiagnosed (and fingers crossed will remain clear).
A couple of months ago I had a very sudden onset of Optic Neuritis which was diagnosed at the hospital eye clinic. From this diagnosis an MRI scan was requested of my optic nerve and brain and I was also referred to a neurologist. I became really unwell when I had the optic neuritis and assumed I was coming down with some sort of virus. I felt unbelievably tired, had a tight chest which lasted a few hours in the night, extreme pins and needles in my arms and difficulty thinking. I continued to feel really unwell for a few weeks and had a very quick appointment come though for the neurologist. He did his assessment and advised he strongly suspected MS but needed the MRI scans to confirm. He also requested a cervical spinal cord MRI too.
After feeling the worst I’ve ever felt for 6 weeks, I’ve turned a corner and starting to feel like I’m improving for the last few weeks. The fatigue has lifted (I never knew the difference between fatigue and tiredness until now!) but I’m still suffering with a number of symptoms. This includes numbness below the knees, pins & needles, burning feet feeling, tingling over my spine and weakness on my right side. My right leg is very stiff and tires easily and when walking it often spasms. My eyesight is improving and I’ve been back for a check up at the hospital eye clinic who are pleased with the progress.
I’ve seen the neurologist again today and the great news is that my MRI scans so far don’t indicate MS (scans all done without contrast). However, the neurological assessment is still showing areas of concern. He’s concerned about the high knee reflex (especially on my right), reduced strength on right side and positive Babinski and that this all has started around the time of optic Neuritis onset. I’m therefore having another MRI this time of my thoracic spinal cord and then might need a lumbar puncture.
The neurologist strongly suspected MS when we met last time and he has said that it could still be a possibility or this could be an isolated incident. I’m feeling hopeful that it’s not MS following the scan results so far but I was wondering if anyone on here has been diagnosed just with spinal lesions only? Also did anyone experience other symptoms when they had an onset of Optic neuritis?
To be honest right now I just want to get back to my normal self but these residing symptoms just don’t seem to budge. I’m really grateful that my neurologist hasn’t given up on me yet and is trying to find answers. I know it’s often a long road to diagnosis for many with MS and sometimes it just ends up being inconclusive.
I guess it is what it is. I try to not spend much time thinking about it all. I’m hoping that I’ll keep improving each week and the symptoms take note of their eviction notice.