Newby, dx MS in May, not good year for family, one death in family, father and partner fighting cancer (both won - yes), mother nearly died (dam the fags!), my redundancy and of course the MS. So as can imagine my body failed big time. Now life calmer why oh why can I say walk into tesco and limp out? Every day it seems something new to discover! I don’t share my pain with my family as not long ago my mother said she thinks I am suffering from hypochondria, I only showed her a massive bruise on my wrist where I fell out of bed! Totally fed up, and totally hate my body too. But I know life could be shittier. Just wish I felt confident to speak to my family. I know, I will get over it, just very impatient and not used to slowing down, I liked life 100 miles per hour, all I knew!!
Hi Della, Really sorry to here your bad luck but do know exactly how you feel. 2012 can go and do one as far as I am concerned. Lost one of my best friends, lost my house, and various bits have stopped working as well. Then to top it all had my DX changed on Tuesday to NMO. I am lucky though, I do have friends who get me out and about but otherwise I only leave home to attend appointments. One thing I do find is that people don’t understand MS or related illness. They don’t appreciate the list of issues that go with it. Talking to them does help them understand but I appreciate it is difficult. I would write a list, then have a chat with them and tell them exactly how you are feeling and how it effects you. I did that with mine before I was broken beyond reasonable repair and they knew I would have bad days, great days and ok days. We then made sure we played on the great days and help was more forthcoming on the bad days. Anyway chin up and good luck Strudders
You sound like you’ve had such a tough time, I’m so sorry. MS is a horrible thing but I guess we’ll get used to it (I’m a newly diagnosed too). Don’t let anyone make you feel like a hypochondriac- MS symptoms are real even if someone else can’t see them. Hopefully in time your family will come to understand the illness and what you’re experiencing, and then you might feel happier talking about it. You can always share your feelings on here hon! X
Hi Strudders and Stardust, thank you so much for your responses, got to say did feel even more depressed that no one commented on my post. Woke this am to take my name off site as did feel rubbish about winging about my life when there are so many others in a worst place. I guess I’m still going through the “why me” stage. Just felt not fair as the only one in my family who used to be so fit and active, you know rushing around all the time. Guess it was him up there’s way of slowing me down. Thank you both again for starting my day with a smile on my face x
There is a huge cyber army of shoulders here,but there are times when it is very quiet on the site,bear with us an someone will always turn up.
I never talk to people in real life,but I know there are loads of people on here to talk to,AND they understand the weird stuff that you get strange looks if you mention it to non msers.
It helps to have family/friends onboard,but if thats hard you know where to come.
Pip
Thank you pip. I think I worked myself up to actually have the guts to post something. As only new to this I do not feel confident to even add a comment to someone’s post. Funny how although been dx with MS I still feel an imposter, know what I mean, hopefully kinda get it.
Hello and welcome
I’ve still to get to grips with that slowing down malarkey and I was diagnosed 14 years ago! It does get easier to work out what’s a good idea and what’s not though, so I’m not quite so daft these days 
There are some really good publications available to download or order for free from here and the MS Trust website. They may come in handy for when you feel ready to talk to your family (sometimes making them sit down a read, rather than listen, is a good option). In the meantime, there’s here - we really do understand
Karen x
Very quickly you will feel able to post.
It is support and advice that people are after,and many a time you will see people post that they get a really weird or embarrasing symptom. On here we all understand.
You will soon find there are some people with greater knowledge eg Rizzo with explaining mri results,and general expert advice on everything,Poll on direct payments and story telling the trials and tribulations of living with disabilities but in a way that makes you laugh,and shows life goes on and can still create much merriment.
There is a host of others who know just the right thing to say when you feel at rock bottom and alone. They are in tune with exactly how you feel and just knowing someone is there feeling your pain/anger/fear/loneliness helps you on the first step out of a big black hole.
Others can point you in the right direction will benefits and legal stuff about rights/employment laws.
Then there are folk like me who just put their thoughts/experiences in as and when they have something to say. It all adds to diverse HMS MS. Welcome aboard.
You may find writing how you are feeling on here is a release in itself,and seeing the words in black and white puts it all into perspective rather than the overwhelming jumbled mass of thoughts that at the moment consume every waking thought.
All I ask is that when you do post will you space the writing as I have done,because when its in one solid block those amongst us with visual problems have problems reading it.We do give up on very long posts if we can’t read them easily.
Pip