I just wanted to say hello if that’s okay. I am very new to MS and have never looked at forums of any kind. My hubby was given his RRMS diagnosis 4 days ago. Initially, he didn’t speak, until I took him to tell his very anxious parents. He seems to be informing everyone now, well everyone bar his brother who doesn’t seem interested.
I want to help him the best way I can through this, but I don’t know how. I have offered him and ear and told him that I am here if he wants to talk. I have said that I will help him with treatments and go to any appointments with him. I keep saying that I will be with him each step of the way.
However, when friends ask me about it or check in with me on how I am doing he walks out the room. I ask if it is upsetting him, which he says no, but I don’t want him to think I ever talk about it without him or ‘behind his back’. Unfortunately i am better at the science and describing things which our friends know.
It also allows me to listen to the…well my friend/mum/neighbour has it and they were in a wheelchair within months but they still get about stories, which really are not helpful. I am trying to get my hubby who is a constant worrier, to not think of what can happen, and focus on what we can control and the here and now, but all the ‘helpful’ stories are taking there toll.
What sort of questions should we be asking to the neurologist/MS nurses?
I feel terrible that I sometime feel overwhelmed but I push this aside and am trying my best to help him. Is this normal? I don’t know what the new normal is.