Wondered if I could get some advice about my upcoming (I think!) lumbar puncture.
Background is suspected ON in Dec 13, and about 5 years before left sided weakness which resolved and was dismissed after a clear brain only MRI. Saw neuro in March who suspected MS and ordered VEP and MRI full spine brain with contrast.
Due to problems at my hospital there have been huge delays on everything. My MRI results came back to GP several months ago showing multiple t2 hyperintensities at c5/c6 posterior cervical spinal cord. Clear brain and rest of spine too blurry to make out. Contrast showed up nothing. Was told by sec that the VEP were negative. I had a very short letter from the neuro saying my case was being taken to the multi disciplinary team meeting where it would be discussed with the neuro inflammatory disease experts, and that they will repeat the VEP and possibly order a lumbar puncture. So have not actually yet had a follow up with the neuro since my first visit in March and therefore have been in Limbo all year really.
Have had the repeat VEP appointment back in Aug, and then an appointment for a neuro follow up cam through for next Friday, so assumed the Lumbar Puncture was off the cards so to speak.
Yesterday I had a letter through saying I have been booked into the planned investigation day case unit at the end of this month. It doesn’t say lumbar puncture but what else can it be?
So my question is two fold:
I had no information with the letter about LP(assuming that is what it is), so as a self employed person, what should I plan for time off wise - I hear about the headache, but how likely is it I will have one and how long could it last?
My worry is that when they booked the follow up, they expected me to have had the LP. So if I go along on Friday, they may well just say we are waiting for the LP and I could be waiting months again for another follow up. I want to find out from the horses mouth finally what the MRI results mean, but wonder if it might be better to postpone my neuro appt to after the LP?
What do you think?