Well, I’m off to see my GP tomorrow morning to see if he has my MRI results yet.
Since I have been feeling a little more human recently I have managed to think more coherently and have thus made up a list of what has been going on. 'Tis most unusual for me to make any sense - even at the best of times - so I wondered if you nice folks would just have a quick look and see if you think if
a) This list makes sense
b) It is going to help me in achieving some sort of diagnosis in the long run.
I don’t want to put him off with a long list or get some sort of ‘loony bin / hypochondriac label’. I shall have to explain that I have had time to think through things logically. I guess he’s going to wonder why I didn’t give him this list sooner but I hope he’ll understand that when you are feeling all this weird stuff going on, it is hard to get any sense of what it is you are experiencing from one day to the next. I can and have easily described each sensation previously, it’s just the order of things I haven’t been able to provide before.
April / May 2011 (First onset of any problems at all)
V sudden loss of sensation in feet (esp in mornings). Fizzing / crawling sensation in feet.
Pain in hands starts v suddenly. (Have already described this pain to him)
Fizzing/crawling loss of sensation in feet much better.
July 2011 to Early May 2012
Pain in hands continues - becomes increasingly worse, v.v.v.v painful at times
Dec 2011 / Jan 2012
Cramp, numbness in hands and arms. Localised to either right or left side but swaps from one side to other and back again. Stays on one side for days or up to a week then swaps to other side.
Pain, crawling and fizzing sensation in feet returns gradually then goes after about 4 weeks
Early / Mid May 2012
Pain in hands and feet goes!
V sudden onset of Myoclonic jerks. Constantly all day and most of night for nearly 2 weeks, then lessens though still frequent for another 4 weeks then almost goes entirely (suddenly improves).
Legs become stiff and weak - hard to walk at times
Cramps in large areas of body (entire right side)
Crawling / fizzing sensation in feet / legs / arms almost throughout entire body at times.
Mid June 2012
All symptoms lessen quite suddenly, very few jerks, fizzing sensations better, not much in the way of cramps, still no hand pain.
V. v. v. v. fatigued - like never before - but feel loads better.
Legs stiff and weak at times.
Hand pain from June 2011 seems to be returning gradually, when pain strong brings on myoclonic jerks which it never used to do.
Legs stiff and weak at times still.
So what do you think then guys?
Will that be of use to the GP or do I sound like a loon?
Thanks for reading, you are all stars (very patient ones).