I'm feeling pretty pants today after getting some rather unclear info regarding my MRI.
It's hard to explain to others but I thought you folks on here might understand and help me get back on track.
I had my head and cervical MRI nearly two weeks ago. I received a phone message from the Neuro dept asking me to call them yesterday. I returned the call but was only told they couldn't help at that time as my notes were being typed up and weren't to hand. They told me to phone back in the afternoon which I did twice, but each time it just went to the answerphone. I left two messages but heard nothing more that day.
This morning at 8.45 I had a call from the neuro dept saying they were returning my call but couldn't make out my name on the answerphone. I explained what had occurred the day before and that I hadn't heard back and that I wasn't sure why they had asked me to call them in the first place.. The woman on the phone was pretty rude, at one point when I explained I hadn't had my results yet she said "well whose fault is that? Not mine!" It was really weird I wasn't having a go at her at all, I was just trying to politely find out what was going on. All a bit weird really. She said she had no idea why anyone had phoned and said they certainly wouldn't give any indication regarding my results over the phone. She then said I was asking for my results far too early as it had only been two weeks. She told me to wait to hear from my GP and that was the end of the conversation.
Not the best start to the day as I was struggling with my 4 yr old son who has become very wise to the fact that mummy can't chase him around the house to catch him to get him dressed and certainly can't get him up the stairs to brush his teeth etc in the morning! My 6 and 8 year old can't understand why mummy can't walk properly in the mornings, I think my 8 year old is getting worried about it all. It's not fair on them.
Anyhoo.....less than 5 minutes later the same lady phoned again. This time she half apologised (I think - it was fairly mumbled) and said the MRI report was completed but the neuro had not signed it so it would not go to my GP until the end of next week as my Neuro wasn't back in until next Tuesday. I asked again if she could tell me what was in the report she said I was to be sent for Nerve Conductivity Tests. That was the end of the conversation. I guess she hadn't had a good start to the morning either today :(
So here I am now sitting here felling pretty rubbish. I guess my MRI was clear which must be a good thing but I still feel so rubbish. I don't know what to do or indeed if there is anything I can do. I think the conductivity tests are because I was having so much pain in my hands and feet. At one point the docs were strongly suggesting peripheral neuropathy but for some reason they decided it wasn't that after all - I can't remember why they crossed it off the list but they seemed pretty certain. When MS was mentioned, I read the info on this site and was not surprised they thought it could be MS - it was the closest match to anything else I had been told it could be. When I was referred to my Neuro he immediately said it was unlikely as I would have a very unusual MS with my symptoms - I was having a lot of cramps and sharp pains in my hands, my legs were very weak at times (to the point I could hardly support myself) and I was having frequent myoclonic jerks at lot at the time I saw him. I also have a constant tremor but I have had that for years. Does this sound like it could be MS? I don't know. The Neuro said no way with the Jerks.
Worse still, and this sounds really stupid, I have felt better of late. The pains in my hands went, the jerks calmed down (I think they were often in response to the pain in my hands) and I had one week of awful cramps. Right now, I am fairly symptom-free but my god I am tired, I have honestly never felt this tired in all my life. I am sleeping so well but in the morning I am struggling to stay awake even driving the car etc. I wondered if this was some sort of MS remission stage? I certainly don't feel right at all, but I don't have the severity or regular pain like I had before. I do have days where I cannot walk well at all for stiffness in my legs and I still have the old tremor but my other symptoms have gone. I'd really appreciate an opinion on this. I daren't tell the docs in case they discharge me - I don't feel fixed yet!
I don't know what to do next. I feel like such a fraud, I have had so many blood tests, reflexes and now the MRI and all have come back fine (I'm guessing the MRI is OK). If the nerve conductivity is OK too I'm pretty certain my Neuro is just going to put it down to some sort of lunacy or something! He isn't very sympathetic at all and seemed very uninterested during our meeting. All the time I am really struggling with all this, I can't explain to people what is wrong and it is hard to ignore the way I am feeling right now - I feel like I'm in someone else's body ( a much older someone else who has abused their body for years!).
I thank anyone who has taken the time for reading all this - it must have taken some perseverance. I'd be so grateful to hear from anyone who can understand this. Also do you folks think MS is off the list now?