I am Monika. I am from Hungary though I used to live in the UK. I have been living with relapsing MS for 11 years. I had problems always with my walking but in the last 2 years it was very bad. I lived in the UK with my partner for 4.5 years. He worked in hospitality. In the last 1.5 years I couldn’t get out of the room as I couldn’t manage the stairs, so I was on my own many times and locked in the room nearly every day. We have no car, so I couldn’t get anywhere only if our friends visited us and I felt strong enough to get down the stairs. We decided to move back top Hungary in April. I have more people around here and hopefully I can improve here.
I am trying to eat according to the Wahls Protocol, but I find it very hard as the selection of food is lot smaller in Hungary as was in the UK and prices are also very bad.
I have heard about Ocrevus a couple of months ago and checked it online. I found that there will be a trial in Hungary. So I was able to apply. I had to go to an examination and the doctor said that I have just enough points to get in the trial but they will choose only 20 persons and they will let me know if I am in the group of 20 in September. I didn’t get any reply until Monday so I thought that they didn’t pick me. But Monday they called me and said that I am in the chosen 20. there will be two more big examinations in the next two weeks before they want to start the trial.
I am writing here as I think that I can get more information here as I could get in Hungary as Hungary is a very small country, its population is even less than London’s population.
I have read about Ocrevus, but I don’t know anybody who is treated with it.
What are your experiences? I am interested in everything.
I am also interested in your opinion about the Wahls protocol.
Thank you for your replies in advance.