Hello
It’s not unusual to have a bit of a ‘come down’ from steroids, so that might account for your feeling so rough and tearful. Not that you need to have just had steroids to be feeling a but crappy just now. It sounds like you’ve had a nasty relapse.
Don’t forget that steroids are supposed to help shorten a relapse they aren’t a cure. And of course, they don’t always work either, they are contrary beasts.
It sounds like you should be on a DMD, just to avoid relapses as bad as this one if possible. Is there a reason why you’ve not taken one up to now? Is it worry about needles? Or side effects? Some people are just reluctant to take drugs. But have a look at MS Decisions aid | MS Trust There are so many DMDs available now, it’s a good idea to get on one.
Sometimes you do have to accept that to get over a relapse you need to slow down a bit, make sure you get enough rest, accept that sometimes we all need help from those close to us. Apart from anything, the people who love you perhaps need to take care of you; watching someone you care about pushing themselves hard and stumbling about because they don’t want to appear weak is upsetting. It would help them to be able to help you.
If you have ongoing symptoms, if there’s a bit of residual damage, maybe you could also do with some help from physiotherapy? Do you have an MS nurse who could refer you? Or perhaps there’s a community rehab or physio team to whom you could be referred by your GP if you already aren’t on their radar?
With regard to the numbness in your mouth, that’s a nasty little hidden effect, something that other people can’t see, but affects you quite badly. The only advice I can give is to eat slowly, pay attention to what you’re eating and drinking. Biting your lip, tongue, cheek, etc isn’t nice, I’ve done it quite a lot. So it’s all a part of slowing your natural inclination to just zoom around, maybe pretending to yourself that you can just ignore MS. This relapse is reminding you that you can’t.
I’m sorry about that. It’s not a nice thing to have MS jumping on your back and saying ‘oy, remember me?’ But try to treat yourself and your body kindly and allow it to get some rest.
Sue