hi, im new to all this,
ive been putting off writing anything on here as i avnt been diagnosed and sometimes find it hard to put into words how im feeling. for the last 4 months i have been experiencing all these different symptoms, some which come and go but the worse as of yet is the dizzyness and light headedness which restricts me from getting on with most of my every day things such as doing dishes or ironing ect… as standing to long makes it worse and causes really sharp pain in heels. i have been back and fore my GP for a few months now, i have had blood tests done for thyroid, bones, liver ect… and all came back normal. then i was prescribed diclofenac for inflamation of the neck which didnt work, then stemitil incase it was an inner ear infection which only worked for awhile and hayfever tablets which done nothing.(sorry if it sounds like im having a moan). since the dizzyness started 4 months i have had a series of other symptoms which sounds related to ms but i am aware that it could b related to other neuro problems. i feel that i have falling into my own little bubble which no-one else understands and have become very depressed with horrible thoughts goin on in my head. thing is i cant afford to be having these thoughts as i have 2 children a son 15 and a daughter 11 and honestly think if i didnt have them wouldve done something stupid by now. ive been practicly house bound since the dizzyness started and hardly see anyone through the day as my partner is in work and my children in school. its true what they say " you find out who your true friends are when you really need them" as i have hardly seen who i wouldve considered as true friends in the past. anyway i have mentioned to my gp that i think i might have depression and her reply was she couldnt give me anything as i wasnt showin any signs of it to her.
after many trips to the doctors and a&e my gp finaly decided to reffer me to a general medicine doctor which i waited 4/5 weeks and couldnt stick the symptoms any longer so i asked my gp to push it and move it along quicker, i now have an appointment on monday 1st oct after symptoms started in may and fingers crossed il either have some answers or at least something to relieve the pain and tingles. it really does give you some relief writing it all down… my symptoms at the moment are…
*pain in right neck/shoulder/arm/rib/leg
*tingling in hands/arms/leg/feet
*weakness in arms/legs ect… like jelly
*stiffness and pain in all joints fingers/elbows/shoulder/hip/knees/ankles
*numbness in shoulders/hands/legs/feet
*tightning around the right side of my chest and rib cage( sounds like ms hug)
*dropping things from my left hand
*muscle spasms/twitches mainly in my legs
i can understand that saying all this to my gp makes me sound like an hypacondriact (sorry about the spelling) but how else are they suppose to find out whats wrong with me if i dont tel them whats goin on, im at my wits end.
thanks to anybody who reads this and any advice would b really grateful, sorry again if i have ranted on to much.
paws 
x
Hi Paws,
You’ve obviously read up about MS and some of your symptoms do seem to be MS symptoms, but they could
be lots of other things too.
It’s good you wrote down your symptoms- take it with you to your appointment. Did you write down dates and how long they lasted? That can help the Dr.
Don’t know what a general medical doctor is but ask if you can be referred to a neurologist - then they might send you
for an MRI. I’m aftaid these things take time and your GP can only treat each symptom as an individual.
Try and keep positive , you’ve found this site which might help - do shopping online, try and make your
life a little easier and try and keep healthy.
Good luck tomorrow and let us know how you get on.
Jen xx
Hello paws and thank your detailing what so many of us have (to some degree or other) experienced; I can understand your deep frustration and I sympathise. I am NOT qualified to comment on your symptoms and I hope that your appointment on 1st Oct (tomorrow! yay!) will lead to the start of some meaningful answers for your and for your family; not for nothing is the period before any neurological diagnosis (whether MS or otherwise) often known as “limbo” and many of us have shared your anxiety, as we attempt to contemplate our distorted futures… The simple (and inadequate?) words of comfort that I can offer are that the “delays” are no-one’s fault, but “ranting” (and I do not think that you were ranting) is certainly better than muffled, anguished silence. Please let the boards know how you get on.
John
hi both,
thanks for your replies, got my appointment this afternoon will let you know what happens
paws x
Just thought I’d mention this paws. I have a ‘perching stool’ to sit on to do the ironing. It means I am still able to do that job which I wouldn’t otherwise be able to do as my legs couldn’t hold me up that long. Just ‘Google’ it and you ought to get lots of websites that sell these! Good luck for today! Teresa xx
update after general medicine appointment,
i seen the general medicine doctor on monday for my symptoms and considering he listened to everything i said to him i stil wasnt reffered to a neuro, instead because i have been having regular palputations they have arranged for me to be fix upto a heart monitor on tuesday for 2 weeks to see if this has anything to do with my symptoms( which can be taken home thank god). also had a couple of blood tests done for b12 and thyroid and some other things which should be back in 2/3 weeks. no medication at this point for the pain as they dont want to guess whats wrong with me or prescribe the wrong medication for me, so im afraid its more waiting for me:-(
hope everyone feeling as well as can be x
Hi Paws, Your symptoms are very much like mine, I have had ENT tests for balance and vertigo…Get results next week. MRI came back as non specific!!! Constant ache in my arms, fingers and legs…So tired and horride headaches, doing small tasks like you said ironing it kills me…
Yesterday was a great day, until I went upstairs I didnt rush or anything I was putting some towels away, when I felt so sick and the room was spinning as if I was on a merry-go-round. I had to lie down until it went, and today my head feels like its going to explode!!!
We all want anwers but god it takes for ever.
Jan x