Not sure what i have, but i am incredibly scared....

Since i was sixteen I have suffered with a “bad back”, which was always treated with painkillers. At the age of 19 I suffered an extremely bad case of glandular fever, since then (and i am now 40) everyone has always but my server fatigue down to that.

Most of the symptoms i have, i have had for a long time and some how with the aid of pain killers and a good diet seem to get by. These symptoms are, numbness in my right leg, pain in my right hip, numbness in my right arm. I often have pins and needles in either my right arm and/or leg. Sever joint stiffness, the list is endless. There are many times, i don’t say how i am feeling for the fear of the dreaded “eye roll” from unsympathetic friends. I’m certain they think that i am a hypochondriac, so tend to keep quite.
More recently, i have had an MRI scan on the bottom of my spine, as i have a disc problem, which has been identified by this scan. It has only been through the treatment that i have received from my consultant, who has hinted that all the symptoms i have could be MS. Don’t get me wrong, the thought of having this disease terrifies me, but the thought that i am not going mad, and that there is a label for all these weird symptoms that i am having at least makes me feel that i am not entirely crazy.
I have been referred to see a neurologist in March, hopefully i will gain some answers, but have to say, and I am more terrified that I wont get any answers. It’s really difficult to tell anyone how i feel at the moment, as I don’t want to worry anyone or yet again, come across as a complete hypochondriac. Has anyone else had a similar story?

Hi, I think my experience of being tested and re-tested and still nothing showing that was causing my problems, does identify with you somewhat.

For 15 years I had MRIs,Ps, EMGs, VEP, plus gallons of blood tests.

I was wrongly diagnosed with PPMS for many years, as my symptoms were very PPMS like.

My current dx is only a half dx;

spastic paraparesis/cause unknown/coud be genetic but no evidence available

You say you have spinal disc problems…could that be the cause of your numbness and pins and needles?

Hope yor neuro appt is useful.

luv Pollx