Not being taken seriously

Trudyc

your not alone ,i am in exactly the same place doctor says ms is not painful and everything i read across the world says oposite ,is there no way to bring this information to doctors,or do they not listen to patients,i told my doctor he is wrong im in no mans land somewhere between fibro and MS ,the local gps are useless ,its unfortuanate that we have a illness no one wants to say yes you have this ,so keep going eventually they will say it is MS

MS does cause pain and it can affect people differently. They’re clearly miss informed. If it didn’t cause pain why do they prescribe nerve pain killers and pain killers in general.

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Trudy & liewhit,

MS mimics many other diseases with similar symptoms & can only be diagnosed by a Neuro (not your GP) & then only after the results of many tests, which often take quite a few weeks/months to be done. The whole process (to reach a dx) usually takes a long, long time.

Very often a Neuro will want to wait a year before seeing you again to see how you’ve progressed…nothing with MS is quick, you have to learn to be patient, worry doesn’t help the condition…nor does dr.google.

So maybe you should ask your GP to refer you to Neuro Trudy.

I’ve had MS for 38yrs. & rarely have pain, but many MSer’s have lots of pain…everyone’s MS is unique to themselves, I’m lucky.

Rosina

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These doctors have no personal experience of MS, so how can they be sure a text book is correct?

Ask the MS sufferers and they will give you the correct answer…ie yes, MS does cause pain. Mine is kept under control by medication.

Boudsx

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Can relate, many people on here can. X