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Northwest people?

Hi, I often as I think many others do walk round, albeit slightly funny at times, or drive and look at others also out and about wondering if they have m.s? Not because they look like it but because it can be very invisible and mine was for many years and mainly still is unless I walk a certain distance? I also look at people using sticks etc and have an urge to ask them, obviously I don’t. But its clearly a common disease as look how many of us use this site and their will be some that don’t. So my question is who is from the northwest area? Gives an idea of how common it is… I already have known of three people through work who have it and two people out of work. And when people find out I have it they always know someone else with it. Im from Preston and 32. X x x

Hello 32 from Preston,I’m 49 from the Wirral.You are right in what you say,as everybody knows somebody with MS.As for who they are,one thing I do know is that girls with MS tend to waddle like a duck when walking,it’s to do with the pelvis and underpinnings.When I could walk with a stick it was said that I walked like a toddler…Admittedly a big, foul mouthed,smoking, ginger one,but,hey…Bite me.

I know four people not counting the fragmented MSS Chapter I used to grace with my presence, and have heard of 20-30 other peeps

Wb x

Haha…I’m ginger too…a link to m.s maybe! :slight_smile: another eh? I don’t waddles as yet. Be interested to see how many more from the northwest! X

i’m 54 and from bolton/wigan area.

i recognised ms in a lady who goes to my gym so i asked her.

a young girl recognised my ms when i was on the way to festival number 6 in wales.

she asked me if i had a neurological problem and told me that her mum has ms.

so it seems that i can tune into other peoples ms?

Maybe we have radars? :wink: x

Long before my diagnoses before ms was even mentioned as I had never been to docs was doing a ladies hair at. Wedding and she said have you got ms I know people with it and they walk like you wtf!!! I was freaking out as I had never thought of that being the problem! And I can relate to what your saying people who walk with a limp or a stick you almost want to ask them!! Emma x

i’d say ask them because i really didnt mind being asked.

if they do mind maybe they havent come to terms with it yet.

all the people with ms that i know are really nice and emotionally strong people.

Dear 32 from Preston,there is a sort of MS/Ginger link as there is the Celtic connection.My mother is half Oirish and has Lupus which has been in total remission for eight years.A lot of MS and Gingers in Scotland.

Wb x

ps I think you might just be right about the radar…keys. Apologies for being a smart bottom.

Hi im from Manchester area in Swinton, originally from PWLLHELI north Wales,

I much prefer if people ask me way the stick and the duck walk rather than make their own mind up that im driunk all the time (I wish)

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I much prefer if people ask me way the stick and the duck walk rather than make their own mind up that im driunk all the time (I wish)

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With today’s “big” news about middle class serial drinking, there is a certain type of supercilious half-wit who delight in suggesting that we’re drunk. Whenever I tell them about MS I always add on that I will not accept an apology. Gets some great reactions, especially when I start going into detail about the symptoms. I’m from The Wirral but now live in East Sussex, (currently enjoying a small beer!)

Cheers, Steve

Interesting I’m sure there must be more from northwest still no here??? Come fwd don’t be why? I have Irish in me WB, My dad is from colraine although my grandad also had m.s but he was from good old leyland :slight_smile: same as moi. Love my red hair although maybe I should dye it and then I may be cured? :wink: Steve I’ve had a few glasses of vino tonight well prosecco…love it… Tell you something though since my walking has been affected I don’t walk so well after prosecco…must be the bubbles eh? Oh well it’s Mother’s Day after all, reason to celebrate… Apparently from having my boy I’m very lucky to be alive and kicking so always celebrate that fact! Well on special occasions that is not everyday…blimey now I sound like I have an alcohol problem :wink: xxx P.s if we get enough from this area we could arrange a meet up? X

Hi LisaLou,

I’m new to the forum. 1st post, but I’ve been lurking for a while.

A couple of things prompted me to reply to your post. I’m also from Preston. Also I’m interested when you say that your MS is only really visible if you walk a certain distance.

I’m in limboland at the moment. I was dx with TM about 18 months ago and have mostly recovered except that if I walk any distance (about half an hour) I begin to have problems with balance, speed (it’s just not funny when the pensioners with their zimmer frames are overtaking you) and a dragging leg. I’ve never understood how I can go from functioning absolutely normally most of the time to needing a stick within the hour and needing a chair for longer distances.

I have some other issues which I wont bore you with, but due to some new recent developments, I’m being reassessed, new MRIs which I’m waiting results from and a referal to the Walton Centre.

Everything just seems to take forever!!

TM…I worked with a young girl with that not so long ago…she relies on crutches all the time. I struggle after about ten mins …I can stand for quite a while but walking is different. Share your experience with balance as the further ago the more this is affected. Where is the Walton centre? And I’m sure your other issues are not boring but clearly affecting you so dot be ashamed of them hun. How old are you and male of female? X

The Walton Centre is a specialist Brain & Neuro centre in Liverpool. From what I can gather it has a good reputation and the Dr I’m due to see specialises in MS, Not sure whether that is a good sign or not

As far as the TM goes I think I was very lucky. It can be very severe and leaves a lot of people severly incapacitated. On the down side partial TM (which I had) seems to be more often linked with MS than accute TM.

I think I’m just very self concious that people will see me walking normally and then see me struggling with a stick and then later on when I’ve had time to rest see me walking normally again. I know I shouldn’t worry about this but it’s hard not to.

Other issues, I’ve had trouble with severe stabbing pains (thankfully now stopped), numbness, pins and needles and trouble with coldness as part of the original attack, feeling spacey, dizzines when looking at large patterns on carpets(?!), dropping things, can’t find the word I want or words fall over themselves and don’t make sense, difficulty explaining things. More recently a strange sensation and taste in one half of my mouth, trouble with and jerking of what I would have classed as my good leg, needing to sleep in the afternoon and generally just feeling like someone else rather than me if that makes sense. Oh and my short term memory has gone to pot. Bored yet??!!

Nearly forgot, I’m female and 43.

The Walton Centre is a specialist Brain & Neuro centre in Liverpool. From what I can gather it has a good reputation and the Dr I’m due to see specialises in MS, Not sure whether that is a good sign or not

As far as the TM goes I think I was very lucky. It can be very severe and leaves a lot of people severly incapacitated. On the down side partial TM (which I had) seems to be more often linked with MS than accute TM.

I think I’m just very self concious that people will see me walking normally and then see me struggling with a stick and then later on when I’ve had time to rest see me walking normally again. I know I shouldn’t worry about this but it’s hard not to.

Other issues, I’ve had trouble with severe stabbing pains (thankfully now stopped), numbness, pins and needles and trouble with coldness as part of the original attack, feeling spacey, dizzines when looking at large patterns on carpets(?!), dropping things, can’t find the word I want or words fall over themselves and don’t make sense, difficulty explaining things. More recently a strange sensation and taste in one half of my mouth, trouble with and jerking of what I would have classed as my good leg, needing to sleep in the afternoon and generally just feeling like someone else rather than me if that makes sense. Oh and my short term memory has gone to pot. Bored yet??!!

Nearly forgot, I’m female and 43.

Nope not bored…don’t be silly, that’s what we are all here for you know… We all have similar problems some not as bad in t,s of whats happening however no matter whats going on we all feel the same. If we have enough from ten northwest maybe you should come to a wee meet up? Do you good. And I can relate to what your saying as my walking corrects itself after rest too. Don’t worry about it, but as you said its easier said than done… I feel like that as its only recently my walking has been affected…last two months maybe more! But I’m now looking at getting a stick and its all very worrying. I have a little boy age three and I’m very conscious I need to make as little deal of this as possible them it doesn’t feel like it affects him as such if that makes sense. Keep that chin up and this site is great for dealing with out demons. So many helpful people x

Thanks LisaLou

Nice to know someone has the same issues, although nice is not really the right word. Better if none of us had to deal with this.

My kids are all grown up now, but I think that children are more resillient than we give them credit for and accept things that we adults have more trouble with. I’m a great believer that as long as we give them love and security everything else will work itself out in the wash.

Given the choice between a parent who has a few problems, but whom I know will always be there for me and one who is completely “normal” (and I hesitate to use that word because hey who’s normal?!) but spends no quality time, I know which one I’d pick, so don’t beat yourself up on that count.

Took me a while to accept my stick and I still haven’t fully (won’t even begin to tell you what I think of the wheelchair, which thankfully don’t have to use often). I found a fold up one (stick that is) which fits in my bag is good as I can have it with me and only get out if needed. I also found carrying it folded when I didn’t need it rather than putting it in my bag made me more comfortable when I did need to use it if that makes sense.

Thanks LisaLou

Nice to know someone has the same issues, although nice is not really the right word. Better if none of us had to deal with this.

My kids are all grown up now, but I think that children are more resillient than we give them credit for and accept things that we adults have more trouble with. I’m a great believer that as long as we give them love and security everything else will work itself out in the wash.

Given the choice between a parent who has a few problems, but whom I know will always be there for me and one who is completely “normal” (and I hesitate to use that word because hey who’s normal?!) but spends no quality time, I know which one I’d pick, so don’t beat yourself up on that count.

Took me a while to accept my stick and I still haven’t fully (won’t even begin to tell you what I think of the wheelchair, which thankfully don’t have to use often). I found a fold up one (stick that is) which fits in my bag is good as I can have it with me and only get out if needed. I also found carrying it folded when I didn’t need it rather than putting it in my bag made me more comfortable when I did need to use it if that makes sense.

That’s why I’m thinking of getting a stick…hoping ill never need to use it but if its there then it ought help my confidence and stop me worrying if I can make it or not or am I going to look stupid etc? Yeah I think charlie will be fine especially as he’s grown up with this really. If we do arrange that meet up you must come for a chatter and a drink? Gonna see how many northwest people we get. X