Falling over in a carpark the other week, now that made me feel stupid!
A very kind gent stopped to see if we needed help as my mum tried to haul me up. Didn’t have the strength in my legs to get myself up.
Mind you once we both got an attack of the giggles I think he just thought we were nuts and siddled off with me still stuck on the ground.
I’d probably be up for a meet up. I don’t really know anyone in the same situation and as only really hubby and my mum see me when I’m struggling most people don’t even know I have a problem.
That’s why a meet up might be mice…for all to have a good chat about us and just about anything. Lets see how many we attract eh? Might post it in young people too. X
From Rossendale, work in Healthcare in Bolton, 41 and RRMS with teenagers who keep me laughing about it all. Keep a stick in the back of the car but fortunately have not had to use it for 2 years when first poleaxed! I think they enjoy messing around with it more than me thinking it is an essential emergancy extra in the car. Can cover quite a distance, even entering (short) running races through my athletic club. I blame the slow finish times on lack of fitness and age but do get a bit unsteady towards the end of the runs I do take part in.
Nice to meet you Vince. Yoi sound like your doing well at the moment which is great to hear. I used to love running but the leg just won’t allow now so yoga and exercise bike it is for me x
Hi Lisa Lou, Must admit, running feels like am just trundling so thinking of dusting down my bicycle instead and taking that seriously again. Did the 26 mile route on the Great Manchester Cycle last year and enjoyed it, so may step it up and do the 52 mile route this year! . Problem is, with increased exercise comes decreased fat deposits and less injection sites for the Copaxone! Also keep looking at the exercise bike and think should utilise that. Just with this, the scenary doesn’t move though at least it is warmer!
I am from Lancaster. I too look at people and find myself wondering if it is ms - gait, sticks that sort of thing. I was diagnosed 7 years ago this month, but with the benefit of hindsight had symptoms going back at least 11 years, more likely 15 to 20 years. I am 56 years old and female, and was brought up on a cul-de-sac of only 12 houses. To my knowledge I am the second of the 20 children who lived on that street in the late 1950’s and 1960’s to have developed ms. Sometimes wonder if this is more than just a coincidence. In addition I know of three others who lived nearby who were also later diagnosed with ms. I am the youngest though, but there was only one male, but ms is more common in the female of the species anyway. Had a female colleague about 1976 who was daignosed in her 40’s and then a male colleague diagnosed at 40ish about 10 years ago. Sometimes think this is quite a lot. Interesting.
I’m not on DMDs as yet Vincent but hoping at my app this week they will consider me for them and think copaxone might be one on the list…I don’t have many wobbly bits (accept the obvious:-) haha) and my mum tum. So maybe ill struggle with that one. I’m hoping my left leg will build back up from this last relapse but it seems to have got to a level where its getting no better Hi flowerpot it is very interesting as I do think its very common. Good to see how common and how many of us are in the northwest. Bet there’s more hiding somewhere x
Female, aged 44, only diagnosed 6 months ago so still very new to all this. On Wirral. Working part time when not having relapses and reactions to medication (still painful to even say the word Copaxone!). Waiting to start Rebif, hopefully soon. Am also under care of Walton. Mum to a 12 year old ‘teenager in training’ and a still pleasant 9 year old! They keep me sane in the midst of all this MS angst!
I’m at Walton Centre too!! Diagnosed June 2012 and just started Rebif. Age 38, lovely husband, fabulous girls aged 7 and 12 and have a great job as a Teaching assistant in Primary school. Trying my very best to take each day as it comes and manage my symptoms best I can. Rest every afternoon and am back running 3 mornings a week which I would never have thought possible this time last year. Caz.
Ooh didn’t see these two posts. Well small world again. Children definitely make things easier to deal with aslong as they are behaving And well done caz for getting back running…think my running has gone now, id look a bit silly with my daft left leg limping behind! Oh well! X x
Cazhoz, good on you! Perhaps the other North West people want to form a relay team to enter a race I am organising raising money for MS Society on Monday 6th May. When I say race it can be a walk, jog or run and each leg is 2 miles in a flat park on the outskirts on Manchester
I’m from Liverpool and go to The Walton Centre. I always wonder when I’m there if anyone from this forum is there at the same time so I could put a face to a name.
I was born just off Lower Lane. Then The Walton Centre was all trees as part of the grounds of Fazakerly Hospital. It’s not really got anything to do with this though!
Hi Steve,this is even less to do with anything.Twenty years ago I was based at Longmoor Lane Fire Station.It was my first posting and it was a busy little Station Area.I remember the old Walton Hospital and the dodgy alarm system,especially at 04,00 'o’clock.,
Hi Lisalou,and in answer to your question,“Dunno”.BUT I get the impression that Walton covers from North of Lancaster to Holyhead for some MS Peeps but there are clinics at some hospitals in that huge area.The MS Nurses are just a little bit busy, and the last time I asked in november there were only two of them.
Not sure I’m going to end up at the Walton now. Saw my consultant about a month ago and he ordered new MRIs and refered me to Walton saying as he was referring me he wouldn’t need to see me unless something showed up on the scans.
Had my MRIs almost 3 weeks ago and got a call on Monday saying the consultant wanted to see me and they were double booking me an appointment into a gap that didn’t really exist.
Guess they found something. I’m a bit freaked out now. Guess I’ll know in a couple of days.
Hi lisalou, I am 36 and from Preston too! I have had MS for 10 years now. I walk with a stick as it seems to help with pain and weakness in my left leg. It took a bit to pluck up the courage to use it but now everyone is used to me with it. I often wonder the same about who has MS and hasn’t. Rewthy x
so yoga and exercise bike it is for me x
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