My GP suspected MS in May 2017. I was privately diagnosed with RRMS in July 2017. I waited until December for the NHS to diagnose me too.
An out of county neurologist wants me on Tecfidera. But I am not allowed to use out of county MS nurses or clinics.
He has written a pleading letter to my local neurologist. My GP has written to them too. My MP has written to them. My private neurologist has written to them. My work place has written to them.
It has been another four weeks. I have phoned twice and have been told that they are writing to me. Nothing!
today I am worried that I am relapsing. Amongst other things, my face and tongue have been completely numb for three days and I can’t stop sleeping. (Sorry I do understand that many other people have it worse)
I phoned the private neurologist, the out of county one, the local one, the GP, and the MS nurse. The GP says only a neurologist can help, the secretaries say they will pass the message on, the MS nurse says I am not on her books yet. Arrrgggh.
It is so frustrating. Very sad and a bit scared. Sorry for sounding off, I just know that so many of you will understand.