When I last had my Tysabri, I had a very sweet houseman asking me the usual questions (changes in symptoms, relapses, steroids since last time? etc). He told me he had looked at the MRI I had in July and there wasn’t much difference from my last MRI, done in 2011, But I’m in much worse shape than I was then. I’m using two sticks now and still struggling to walk (I was walking quite well on one stick then). I don’t have enough control over my right leg to drive a car, whereas that leg was fine two years ago. My bladder control is also quite a lot worse.
So is this a sign that my nerves are dying and this doesn’t show on the MRI? Or is there some other, nicer explanation? Ideas / experiences, anyone?