It’s been quite a while since I visited the Forum and I hope you are all keeping well. This may be a subject that has already been discussed or that you are aware of but it was brought to our attention at OH’s annual review this morning and has me worried so I thought I should share it with the community.
NHS England are looking to withdraw funding for DMTs.
"Suggested common stopping criteria for all DMTs
The current DMT should be stopped if any of the following criteria are met:
No reduction in frequency or severity of relapses compared with pre-treatment phase following adequate exposure to the DMTs (which varies for each DMT but should be a minimum of 6 months).
Intolerable adverse effects of the drug.
Development of inablility to walk (EDSS 7), persistent for more than 6 months, due to multiple sclerosis. (This affects us)
Confirmed secondary progressive disease with an observable increase in disability for more than a 12 month period, in the absence of relapse activity, and an EDSS of 6 or greater (except for the rare phenotype of relapsing-progressive multiple sclerosis)
Criteria 1 and 2 might lead to switching to an alternative DMTs. Criteria 3 and 4 will lead to stopping all DMTs.
We note that past criteria have included pregnancy, breast feeding or attempting conception, but we note increasing evidence that some DMTs may be considered safe in these situations.
We propose that stopping DMTs should lead to continued care within the MS team or transfer of care to services which can provide appropriate support, such as neuro-rehabilitation."
For the full document Google: NHS England Specialised Services: Recommendations for an NHS England algorithm to use disease-modifying drugs to treat multiple sclerosis.
Public Consultation closes 5 May 2018