I was diagnosed with MS about 5 months ago, during a relapse, following 2 years with a CIS diagnosis.
I began discussing DMTs with my current neuro, but am in the process of being referred to a different neuro centre near to my work, where they are able to offer the full range of DMTs (if you fit the criteria).
So at the moment I’m not on a DMT and am unlikely to start one before the end of this year, once I’ve seen my new neuro. However I’ve done my own research into the disease and the treatment options, and am getting really confused by conflicting advice - so hoping you may be able to give me some words of wisdom!
Much of what I’ve read emphasises the importance of starting a DMT as soon as possible, and some also advocates the use of the drugs in the ‘more’ or ‘highly effective’ category, even if your disease does not seem severe at the present time.
However my current neuro has suggested that, statistically, my presentation indicates a better prognosis than for someone presenting with more frequent and ‘disabling’ attacks (my symptoms are mainly sensory, though I did have some bladder issues during my last relapse. I have 10+ brain lesions which were stable at the last scan, and have had 2 spinal cord attacks, which seem to be the main cause of my symptoms). He has suggested that people in my ‘category’ probably don’t need anything other than a moderately effective DMT, or no treatment at all, as the disease may well never progress much. I just can’t get my head around how much this seems to contradict such a lot of what I’ve read. I know no-one can predict the future or the course the disease will take with any certainty - but does my current neuro’s advice sound sensible / reasonable? Is it fairly typical advice for people whose symptoms seem relatively mild? I’m not too keen on taking medication if I can help it, and would rather not create additional health problems for myself with side effects of the stronger DMTs - but then again the possibility of MS turning from apparently ‘mild’ to ‘severe’ is quite scary…
I’m so anxious and confused! Do you have any thoughts? As I said I have a while to wait before I can see my new neuro, so it will be interesting to see what s/he says when the time comes.
Thanks for reading