Posted on here a few times and really appreciate the support…but I’m now at the point where I don’t know what or where to go from here. Any advice would be appreciated!
Symptoms started last July while on holiday. Started with tingling in both legs and UTI. After taking antibiotics I felt fine for about 3 weeks then symptoms started again, tingling in legs, right side of face, sore wrists, waking up with a numb big toe and arms, weak arms, right leg just doesnt feel right, blurry vision in right eye, severe lower back pain and pain in legs. These are all intermittant apart from the blurry vision.
I’ve had brain, cervical spine MRI, lumbar pucture and VEP all clear. Referred to eye clinic, no sign of Optic neuritis but on second visit have said there may be something wrong with the eye muscles so being referred to another specialist. The last letter from Neuro was one sentence “lumbar puncture and VEP shows no sign of multiple sclerosis” which I was really pleased about but…no follow up??
I’ve been back to the GP as I was in so much pain with my legs, he prescribed Amitriptyline, so hoping that kicks in soon!! I just dont know where to go from here, I’ve never had a lower spinal MRI and it seems like the neuro has discharged me. I’m now 8 months down the line and not sure if I should be asking for a lower spinal MRI or if I should give it more time?
Thanks for listening, wishing you all well xxx