I’m new on here and thought I’d give it a go.
I was diagnosed last November and apparently I’ve had this for about 24 years. The first time anything was wrong was about 23 years ago when my torso went numb, this lasted for about six months. I spent a week in hospital at the time, lumber puncture, MRI’s, whispered conversations in the corridor about whether I was on drugs! I wasn’t by the way, not really. As mentioned, after six months it just went away. I vividly remember whilst I was in hospital, the guy in the next bed telling me he had been diagnosed with MS and being properly shocked. It never occurred to me that I had it and seemingly didn’t occur to the doctors either.
Anyway, jump forward about ten years and my feet went numb for about six months, all sorts of tests again and then it went away. They offered me a brain scan, but the symptoms had gone, so I thought ‘what’s the point, I’m fine!’
For the past ten years I’ve had all this niggly annoying stuff, like bladder and bowel problems. I even had some operations on my bladder even though I had asked two different doctors/consultants whether, when considering other symptoms I had, there was any chance it could be a neurological issue, which of course, it turned out to be. About three years ago my legs and feet started burning all the time and this has been investigated for the last two years (yes I did leave it a year before telling the doctor, it might have gone away!) and last November after having a brain scan, they found two lovely scars in there and put two and two together to make MS.
That’s it basically, for the last few months I’ve been having various tablets to try and ease the burning, haven’t really been enjoying the side effects and had no relief yet.
Anyway, thanks for reading, I don’t have any specific questions but would welcome any comments, I don’t know what type I’ve got or anything, and don’t know what to think at the moment.