Hi, my name is Kim. I’m 65 and diagnosed 2 days ago.
I had been having lower back pain with numb tingling feet. Registrar physio applied for a MRI. Discovered I had numerous lesions in my spine so referred to a Neurologist. He organized loads of blood tests and lumbar puncture all with negative results. He listened to my symptoms and went through my spine MRI with me then said it was MS and I had probably suffered for years with it without knowing. If only the GP had listened to me when I kept going to see them about numb feet.
I’m now wondering what will happen now. I have been referred to the MS nurse.
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Crumbs, that must be a shock to the system. I’m sorry that you have had this unwelcome news.
I suppose the only good thing to be said is that if you’ve had it for a little while, and it hasn’t got in your way too much, that might offer some encouragement about prospects for the future. Still rotten news to get, though.
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Hi Kim, I’m just wondering, did the neurologist tell you anything about what ‘type ‘ of MS you have or about the range of Disease Modifying Treatments? If not then I guess that might be discussed when you see the nurse.
Before any second meeting with the neurologist or the meeting with the nurse then it’s a good idea to read up on MS and the range of treatments.
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Hi Kim. Well, I imagine that was a bit of a shock to the system. I’ll let you all know if/when I find out. I suppose I’m still in what seems to be known as limbo at the moment. I suppose at least you know what’s going on now - there may be some comfort in that x
….. I already have an MS nurse (probably because of my seizures), she’s a lovely lady - I hope you get one that’s at least as nice 
All of my lesions are on the brain - I was never the sharpest tool in the box before all this anyway so, I’m really not looking forward to an MS diagnosis ha ha.
On the plus side - Spring is just around the corner…. A time of sunshine, new beginnings and new growth so, look after yourself as best you can.
Take care Kim x
All the best.
Jon.
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A shock - yes!!! He didn’t say what type of MS it was but did say treatment not indicated at the moment. If any new lesions in the next scan he would talk through my options. I am on Pregabalin and Amitriptyline already but my dose has been increased. I’m looking into changing my diet to avoid inflammatory foods. Also a different exercise routine. I was very fit hiking, swimming, gym class, Pilates so this has crushed me. Looking back though I can remember times when I encountered problems with mobility. I have to be positive in this to cope.
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I’ve suffered with numb feet for a good while now. Not only that I also get the feeling that my toes are all crossed over each other. Not that they ever are, of course. And now both big toes are painful to move. I’ve not been able to move other toes on either foot for years. I can still bend the big toe up but it’s just painful now.. even extremely painful. And I don’t think that my consultant takes it very seriously let alone my GP.
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If you’re looking to adjust your diet you might find this an interesting read. It’s pretty much what I do most of the time and I do feel that choosing real food and avoiding rubbish is an important part of staying as well as we an be.
https://gavingiovannoni.substack.com/p/which-is-the-best-ms-diet?utm_source=publication-search
I really feel for you, worrying about whether you’ll be able to do the things you love like hiking and swimming and so on. I’m glad to be able to do as much as I still can, twenty five years in. But I still miss those lovely walking holidays. It’s tough.
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That was so helpful alison100. Most of the time I can carry on doing light exercise but today I had to give pickleball a miss. I just wasn’t into jumping around.
We went to Amalfi on a hiking holiday last April before I was diagnosed. I found myself really slow for major effort or missing half the day. I knew I was capable but my body said otherwise. It’s hard!
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