Hi I’m Rob, I was taken into Liverpool Royal A&E last week with double vision and numbness and pins and needles in my foot and right arm and transferred on to the ward with a suspected young person stroke. I am 30 years old. After many many blood tests, CT scans, ultra sounds, a full body MRI then a lumber punch they brought a specialist from the walton neurology centre. She told me she strongly suspected MS but won’t know for sure until more results from the lumper punch comes back in 2 weeks. They have put me on a steroid drip for 3 days, I will find out the name later on. Then hopefully I can come home after then. I am just doing research into living with MS and long term effects. They are hoping I will have relapsing remittance. I have had 2 doses of vertigo in the past spread a year apart which may be this be fine first cropping up but also good chances they aren’t related. Just after some pointers for guides to say life style changes, diet, coping with a relapse in the real world and benefit / tax credits etc. I am self employed so pretty much if I don’t work, I don’t earn but I still have to pay loans and rent on the business premises etc so it’s a bit of a concern for the future. I am a photographer and digital artist so my vision and dexterity of my hands are also playing on my mind right now. Feeling fairly upbeat if I’m honest, that’s generally my nature but I am also quite worried at the same time. Thanks for any advice I really appreciate it. Rob
Hi Rob & welcome.
Sorry to hear you’re in hospital but at least you’re getting prompt treatment. Fingers crossed you’ll be going home soon 
I’m fairly new to this too - in limboland as it’s known!- but I have been working my way around this site for a few weeks now & there is a wealth of info on the main pages & on the forum although it takes time to search it out. There’s alot of support to be had here too.
Good luck, get well soon & keep posting!
C xx
Thanks, hopefully will be going home tonight after my thrird drip about 5-6pm. Will be pretty much exactly 7 days since when I came in. Yeah I guess it will take a few weeks as you to read everything and for things to sink in properly
Hi Rob, Im new to all this too but have suspected it for a couple of years - mines PPMS so I dont get the good times back !
As Gynet says there is a lot of info on here, just takes a bit of ime finding everything - I hink youre lucky to be told it might be MS, I had its not ms, its not ms, its not ms, oh you have ms !!
Hopefully its RRMS as you will get plenty of decent times and some DM drugs to help with the relapses - It IS a huge lifestyle change and only able to deal with it as time passes - Im off to check out if there is anything help wise from the MS nurse - seems to have a lot of good press and read elsewhere on here that you dont need to be diagnosed to talk to them !!
Good luck and hope you can keep the businees going !
Andy
Welcome Rob I was diagnosed in Dec following a year of random things, numbness, double vision etc. I was dx following optic neuritis. I’m 32 and started copaxone treatment two weeks ago. Ive also been put on gabapentin for pain relief. I’m going through a bad patch at the min, the optic neuritis is back. I’ve been signed off work for the past week. The only thing that is certain with MS that I have found, is that nothing is certain, I’m coping with it fairly well but it scares the hell out of me. Today I’m having a bad day and so bed is pretty much my best friend. Generally I try to keep as normal as possible. I am hoping to get back in the gym ASAP. In relation to diet, look at the SWANK diet. I’m a veggie and have made the change to soya milk/butter. It’s good to hear you’re upbeat! Long mat that continue Lorna x
Hi Rob How did you cope with the steroids??? Currently in hospital on them now and wide awake at 4am, oh the joys!!! Glad you sorted and diagnosed so quickly, the steroids were probably methyl prednisalone snd the dose I am getting is 1g once a day for 3 days. I am currently in limbo land and have been waiting on this admission since mid December but hope to eventually have some answers. My neuro flatly refuses to discuss further treatment and what if’s until tests done and back! Not good for me I am a planner and would like to know if I can get back to work as have been off since Christmas! Very best of luck and hope you don’t get another relapse for a very long time. Di
I managed to come home last night. what a week that was! But waking up in my own bed next to my girlfriend and cat has made a world of difference to me. Seemed to of coped fairly ok to the steroids compared some things I’ve read. I think your right on the methyl prednsisalone, I think been talking about about so many drugs / medical terms the past few days they all seem to merge into one. Most of the side effects I seemed to get was real bad head aches / migraine, nausea feeling and lots of hiccups!!! Although I think the last one was maybe because the amount of water they made me drink then always lying down because of the headaches. But my numbness is gone now and my vision seems to be back to 90%. I have an appointment with the eye hospital later on to check the muscles in the left eye to check any damage but looks like it’s fixed itself over the last days. No more people with two heads from the double vision!!!
Glad your home mate. The steroids worked well for me too,made me very moody when I stopped them tho. Know what you mean about the double vision , mine lasted 11 weeks, just woke up one morning and it had 80% gone , great feeling to see normally. Take care Gray
Glad it’s not just me being a grump causing me to be short with people today. How long did your side effects usually last? I know everyone different but it’s always good to get a comparison.
One thing I have noticed is the numbness and a bit of pins and needles coming back in my right arm. Is this quite common after a few days without the steroid drip?
One thing I have noticed is the numbness and a bit of pins and needles coming back in my right arm. Is this quite common after a few days without the steroid drip?