I don’t usually like to post things on any kind of platform or admit when I’m struggling but I’ve recently been diagnosed with RRMS after being admitted into hospital due to suddenly going off my legs and losing sight in my right eye. It kind of came out of nowhere, although they suspect I’ve had MS for a few years after looking at my scan results… Following scans and LP in hospital, I’ve just had the diagnosis and I’m just trying my best to follow advice and things to recover the best I can. I’m due to start treatment next week which will be Kesimpta injections so there’s hope on the horizon but I must admit I think it’s just all hit me in one go and I feel like as supportive as my family are, it must be difficult for them to understand and it can be tough… I appreciate them no end and couldn’t do it without them but I do find myself feeling alone at times and struggling both mentally and physically so thought I would post on here of that’s okay with everyone? I have a 2 year old son too so I want to be able to look after him the best I can but I do find myself struggling physically, therefore, my mental health then seems affected and it’s like a vicious cycle… Any advice? I will take anything
Thanks W123, your words are really encouraging. How long have you been taking Kesimpta if you don’t mind me asking? And how are you finding the treatment? I only ask as I’m due to start it on Thursday and hoping I will start feeling better on it so I can get back to being more active as I was before my recent relapse. Also, always here if you need to chat xx You’re right - we got this xx
Hello GemF. I found being diagnosed with MS incredibly scary to begin with. In my case and 16-17 years ago when, as you say , out of the blue I lost sight in my right eye. Vision did return slowly although it not perfect - but i can read. So - It is possible that your legs will recover ( although never quite fully). As you say - it is likely that the damage to brain and nerves started years ago but have only just got got to the noticeable stage. Treatment should slow down the development of the MS and MS isnt necessarily the end of an enjoyable life. Have a look at the website: Overcoming MS. Put togehter by an Australian Dr who has MS It doesn’t offer any crank cures or anything like that but it does encourage things like diets with high unsaturated fats , Vitamin D and encourages exercise, mind fullness and meditation and relaxation. I found it very useful and ive certainly followed the low saturated fats/high unsaturated fats diet. I know that everyone is different but at near 70 years old I’m still able to do things - although e.g after 15 minutes or so of walking i can struggle (my right leg just gives up)
Thank you Hank_Dogs and especially for the reading suggestion - I’ll definitely take a look at that as I have found over the past couple of days in particular I think maybe the diagnosis and relapses and everything mentally is just hitting me now and I need to come to some sort of acceptance of it all… It can just be tough and I can feel quite alone at times but I am finding that forums like this and reading materials are definitely helping, so thank you
P.S. I also find that my right leg leg gives up quite often! It tends to be my right side is worse than my left - the sight in my right eye has also decided not to fully come back after losing it a few weeks ago from another relapse… However, I can still read well after a check up at the opticians so that’s something to hang onto at least as could always be worse
xx