I’ve been haunting this forum over the last few days - not least because I’ve been an inpatient whilst I’m pumped full of IV steroids, had loads of blood tests and neurophysiotherapy.
I just wanted to say what a great community I think this is - I’ve certainly felt less alone as I embark on this treatment journey. Its all been a bit weird - I had double vision 3 years ago, but they were looking for things like myasthenia gravis and it self-resolved, no MRI done. Then early in the summer this year, I started to lose my sigh (thankfully not totally!). For months, I had been absolutely shattered… And then lots of other things started to kick in - pain, pins and needles in strange places, shocking memory and understanding problems… And did I mention I was so, so, so tired, lol?!
My Neuro (an MS specialist) is fantastic, is being so thorough and consultative - I feel like I have a say in my treatment.
Anyway, that’s me. This is all very new and it still doesn’t feel real - its like I am writing about somebody else! I’m om pregabalin for nerve pain which is helping a bit, but I do feel like I’m floating around on a fluffy cloud at the moment…
Looking forward to getting to know you all x