Well it’s been a busy few months but have recently been diagnosed with MS. I feel really lucky, having read other posts to have been diagnosed so quickly, it does seem to be a bit of a postcode lottery!
Well after a busy few months i have finally been diagosed with ms. I feel quite lucky, having read some of the posts to have been diagnosed so quickly. It sadly does seem to be a bit of a postcode lottery!
I had had a few odd single symptoms over the past two years like numb tongue and needle sensation in top of head all put down to trapped nerves. This February It started again with numbness in my stomach spreading up and crushing round my rib cage. Again dr thought trapped nerve. In March things started to get worse when I could not co-ordinate my arm for writing and legs got wobbly. The dr this time referred me to a neuro as I failed the touch nose test poking myself in the eye! Lol by the end of the week I went back as I was missing not just my nose but my head! I was referred for an emergency appointment and had MRI within two weeks. Two weeks later sent appointment for spinal scan and three weeks after that saw my neuro for diagnosis. Who was fab. Luckily she had students in so explained what she was doing really well.
However I forgot to ask lots of things (like you do) and didn’t know if anyone could help.
I was told I could qualify for DMD’s but forgot to ask what happens next? How does that process start?
I have also started gabapentin this week. I have been allocated an MS nurse but as it is all so new haven’t made contact with her yet, I understand she will contact me. However day five of gabapentin and my arms are itching on and off and not sure if this is normal when starting up? Not sure who to ask. Any help appreciated…thank you.
I don’t know what the future holds but I am really positive.