Hi, it`s okay to post on any board, but there is also the PPMS board, where folk with it, hang out! I read most of the boards, so you could too.
I have been thrown into the PPMS melting pot a few times, but the various neuros I have seen, keep chucking me elsewhere too.
At least having a definite diagnosis, means you are your wife are past the big ? stage and are able to focus on what you`ve been told now.
i can see your dilemma about what to tell your daughter.
I reckon you wouldn`t want her to give her idea of going to uni, so maybe hold off telling her the news., until you 2 have got your head round it a bit more.
Reading anything and everything can indeed cloud your views. Plus, a little knowkedge can be a dangerous thing. That`s happened to me on more than one occassion. But you sound like me........you want to know what might happen to try to prepare for it.
Does your wife have visible sympotms, which may be worrying your daughter? She may fear something worse is happening to her mum.
As in all cases of MS...........whichever the type........each person presents with a variety of symptoms. There is no point asking what the prognosis is................no-one can tell you that.
PPMS is one of the types which has no treatment..just meds for managing the various problems............some people have better benefits than others.
If your wife has spasms/stiffness, baclofen can help with that. But it does take a while to find the best dosage.
If she has nerve pain, there are a few meds for that.
One thing I can promise you is this...life with any type of MS is still a life worth living..........there are many folk here who will testify to that.
We all come on this site for help, support and friendship. we even read a joke or two!
If you need any info on benefits, google the subject to see what might be available to you.
One thing I feel really strongly about is this;
ask for help. This could be from an MS nurse, an OT (to check your home for things which would make it safer and easier for your wife) a continence advisor, physio. etc.
Hope some of what I`ve said is of help.
Oh, by the way, welcome aboard!