I was diagnosed with PPMS 3 weeks ago, but I guess I am still in denial. I have got another Neurology appointment next week and I still think they will say there has been a big mistake. I am spending most of my time worrying about how to tell my family. My children are grown up with children of their own, and my Son has a 7 year old with major health issues. My Mum is in her 80’s and has recently been widowed.
There is a big part of me that thinks maybe I should just not say anything to them but I want to be able to explain to my children especially why I cling onto the walls when I walk sometimes, and why I don’t run after the children ( I also have major problems with artritis but tha’s another story). I especially want to tell my Mum that I am sorry I have to sit down more often than she does, that when we go places I wish I could tell her to wait in the car whilst I run into the shop and not the other way round.
How did other people cope with telling people? I would be really interested to hear people’s stories, thanks