Newbie - very likely diagnosis of MS. So many questions!

Hi, I’m 30 years old and I am currenlty awaiting MRi and EVP tests for likely MS. My initial appoinment with the neuro consultant said he would be very surprised if those tests come back ‘normal’! My symptoms started back in June when I had a numb (numb to sensation on touch) area on the left side of my loin which over a week spread down my left leg. A few weeks later, with the numbness still present in left leg and now my toes too, the right foot/toes started to go numb. At this point I went to my GP who said to be on the safe side she would refer me to neurology just to rule out anything like ms. At this point I was hoping it would just be a trapped nerve and thought nothing of MS. Later in July the new numbness in my right foot spread to ny mid thigh just like the other side. At this time I was extremely busy with consolidating my practice placement to complete my Nursing diploma at University so I was quite stressed. I then developed O/N. (I had an episode of O/N in 2007 but from what I remember it was very mild and nothing else was ever done or said) I went back to my GP to explain my new problem which is when she seriously talked about MS and all these symptoms I am having are very common charastic signs of MS. It didn’t really help that I was working 40hrs a week and trying to get my head around it. Being a nurse I have only ever seen the worst of MS (wheelchairs, catheters, carers, hoists etc) and then it hit me and I couldn’t even mention the word MS without bursting into tears! Now I have had a few weeks to get my head around the thought and I’m coming to yearns with it. And I’m pleased to say I did graduate from uni passing with distinction and getting a job on an actue medical ward at a general hospital! So now I’m just waiting for my MRi and EVP tests to find out what happens next. The neuro Dr did mention medications but to be honest at that point it was a bit of information overload! I have also recently developed numbness in my face on the left side a bit Luke the shape/area of a phontom of the opera mask. And also I’m having terrible trouble with fatigue and insomnia. But my shifts at my new job don’t help. I work 3-4 12.5hr shift a week. As I have only been employed for 4 week and I don’t have a definate diagnoses I haven’t told my duty manager yet but I don’t feel my symptons are affecting me physically just yet. I’m a mum to a son who is 9 and a daughter who is 7 1/2. I’m not sure how to tell them about MS. I know they don’t need to know the ins and outs but its hard trying to tell them why I’m so tired all the time. I have lots more questions but will limit my introduction! Nice to know there is a wealth of infomation here. :o)

Hi Rach83

Many thanks for the reply to my thread - and sorry to hear about all that you’ve been experiencing. I’m similar to you - 34 years old, 3 children etc. etc. so know exactly what you mean. I also don’t have diagnosis yet but really interested to hear that you have had second bout of ON. This one that I’m on is different to my last one - but definitely has some similar characteristics - I went fully blind before but this time it’s not like that yet, although it’s only been four days so far. All I know is that something is definitely not right, and as usual the doctors in Bristol have been amazing, I got in within 1 1/2 hours yesterday! I’m due back in 4 weeks to see how things are unless there are any big changes in the meantime.

Do you find your eye has been more-or-less the same since August or gets worse then better etc?

Also, like you, I had other syptoms in 2007 which I did nothing about (part due to embarrassment - no prizes for guessing what) but it does seem that something isn’t right for all this to happen again.

Hope all goes well with you anyway and congratulations on the graduation!

All the best, Sam